Does diet make a differnce?
Tue, July 25, 2017 10:22 PM
Hey everyone, I was diagnosed with Crohn's/ Ulcerative colitis about a year ago. My doctor despite trying I think its called MP-3 or MP-6, steroids and humira has yet to get it any better. I have asked him a few times if I should see a dietitian, or if diet is related to it and he doesn't seem to think so. My dad thinks at this point of a year of no results and being on a lot of medication for this I should get a second opinion. What do you guys think? Does diet help? And has anyone gotten a second opinion? I'm scared if I do I will upset my DR, but I'm so tired of being sick all the time and taking so much medication for this.
Joined Nov 27, 2017
Wed, January 10, 2018 3:16 PM
Reply posted for bananascutie.
I have UC and not Chromes (thank god) and from my personal experience, no diet or type of food has affected my UC. Maybe it's the case for some but not in my case.
hareJoined Mar 31, 2016
Sun, December 03, 2017 8:03 PM
Reply posted for Vinegarclay.
willing to try this but what is your source for finding these ingredients to be helpful
Joined Nov 28, 2017
Fri, October 20, 2017 3:52 PM
Reply posted for Sagacity80 .
The rest:
Rather than go back on these foods, after 3 weeks I've stayed off of all of them for a few months - except for Friday and Saturday nights, or when we eat out, (in which case I eat anything) - and it has worked wonders.
The diet is based on "Breaking the Vicious Cycle" by Elizabeth Gottshall.
I am now off of prednisone. We'll see how long it lasts but it looks promising.
The diet is based on "Breaking the Vicious Cycle" by Elizabeth Gottshall.
I am now off of prednisone. We'll see how long it lasts but it looks promising.
Joined Oct 18, 2017
Fri, October 20, 2017 3:50 PM
Reply posted for bananascutie.
I posted this on the Diet and Nutrition page, but thought I would post it here as well.
I am a pharmacist have had UC for about 20 years, tried all of the medications (on Entyvio and a few others now) and for the past 8 years have been trying to get off of prednisone for longer than a month at a time.
Most people say diet doesn't affect UC.
My new GI suggested an exclusion diet to see if I was sensitive to any of a list of foods after running a panel of blood allergy tests. The idea is to eliminate all of these for at least 3 weeks, then try them one at a time for 3 days before going to the next one, to see how you tolerate it.
The foods are gluten, sugar (both of which should be avoided as much as possible), dairy, soy, eggs , corn, shellfish and peanuts.
The theory is that some of these complex carbs and sugars change the microbiome (good bacteria) in your stomach making these foods harder to digest and irritating the colon lining. Gluten is an inflammatory causing substance (celiac disease is an extreme intolerance of gluten). Adults are not meant to continue consuming milk and dairy products (lactose intolerance is very common, even with small quantities).
Most people say diet doesn't affect UC.
My new GI suggested an exclusion diet to see if I was sensitive to any of a list of foods after running a panel of blood allergy tests. The idea is to eliminate all of these for at least 3 weeks, then try them one at a time for 3 days before going to the next one, to see how you tolerate it.
The foods are gluten, sugar (both of which should be avoided as much as possible), dairy, soy, eggs , corn, shellfish and peanuts.
The theory is that some of these complex carbs and sugars change the microbiome (good bacteria) in your stomach making these foods harder to digest and irritating the colon lining. Gluten is an inflammatory causing substance (celiac disease is an extreme intolerance of gluten). Adults are not meant to continue consuming milk and dairy products (lactose intolerance is very common, even with small quantities).
Joined Oct 18, 2017
Fri, October 20, 2017 3:48 PM
Reply posted for bananascutie.
I posted this on the Diet and Nutrition page, but thought I would post it here as well.
I am a pharmacist have had UC for about 20 years, tried all of the medications (on Entyvio and a few others now) and for the past 8 years have been trying to get off of prednisone for longer than a month at a time.
Most people say diet doesn't affect UC.
My new GI suggested an exclusion diet to see if I was sensitive to any of a list of foods after running a panel of blood allergy tests. The idea is to eliminate all of these for at least 3 weeks, then try them one at a time for 3 days before going to the next one, to see how you tolerate it.
The foods are gluten, sugar (both of which should be avoided as much as possible), dairy, soy, eggs , corn, shellfish and peanuts.
The theory is that some of these complex carbs and sugars change the microbiome (good bacteria) in your stomach making these foods harder to digest and irritating the colon lining. Gluten is an inflammatory causing substance (celiac disease is an extreme intolerance of gluten). Adults are not meant to continue consuming milk and dairy products (lactose intolerance is very common, even with small quantities).
mkuller
Joined Oct 18, 2017
Most people say diet doesn't affect UC.
My new GI suggested an exclusion diet to see if I was sensitive to any of a list of foods after running a panel of blood allergy tests. The idea is to eliminate all of these for at least 3 weeks, then try them one at a time for 3 days before going to the next one, to see how you tolerate it.
The foods are gluten, sugar (both of which should be avoided as much as possible), dairy, soy, eggs , corn, shellfish and peanuts.
The theory is that some of these complex carbs and sugars change the microbiome (good bacteria) in your stomach making these foods harder to digest and irritating the colon lining. Gluten is an inflammatory causing substance (celiac disease is an extreme intolerance of gluten). Adults are not meant to continue consuming milk and dairy products (lactose intolerance is very common, even with small quantities).
Joined Oct 18, 2017
Tue, October 03, 2017 3:15 PM
Reply posted for Vinegarclay.
To vinegarclay,
Thank you sooo much for your valuable advise. I was in the middle of a bad flare up and on the second day doing the bentonite detox, guess what?! No symptoms!!!!!! It's a Godsend. I tried the Apple cider vinegar but the symptoms got worse, so I'll stick with the Bentonite detox.
Thank you!
Sagacity80 Joined Sep 29, 2017
Tue, September 19, 2017 1:38 PM
Reply posted for bananascutie.
I've had UI since I was 17. Never at any point has diet made a difference.
hareJoined Mar 31, 2016
Fri, September 15, 2017 11:49 PM
Reply posted for bananascutie.
Bananas cutie.When our colon is ulcerated and damaged diet will be an issue.Please follow my directions.Try it.It worked for me.Go to the grocery store.Buy organic apple cider vinegar.Mix a quarter cup of It In some water.Drink it.You should notice improvement right away I did.Then find Great Plains Bentonite clay detox.Phissilum husk powder.Mix a tablespoon each in water.It put me In remission immediately.took about 2 days.Your talking to a guy that had bloody mucus sever uc.Pancolitis.Tried every steroid,budesonite,imuran,humeria.Nothing worked but the clay and apple vinegar.Its super easy to try this.Your going to get people here who will say this and that.Until any of you try this like I did you shouldn't make any judgements about what works and what don't.if I woulda never tried this I'd be still in an endless flare pumping disgusting medications into me daily to no avail.Please try this and let me know if it worked.Im curious If it helps anybody else.Please let me know
VinegarclayJoined Sep 6, 2017
Sun, August 27, 2017 1:35 PM
Reply posted for bananascutie.
Hello: I have searched for answers for a few years, Conclusions, diet does not matter unless certain things make you feel better,Diet or meds will not prevent a flare up. Other daily problems such as hiccups and reflux can be controlled by taking laxatives such as prune juice.Crohns and UC are chronic conditions whose symptoms come in sine waves. When above the x axis we get diarhea, when below the x axis we get constipated, hiccups and reflux. I keep budesonide on hand everyday and if guts feel like diarhea, I take one a day until feel normal. Otherwise I drink a glass of prune juice a day. GI docs are of no use. They only want to do scopes or resect intestines. They do not care about daily living. NO drugs prevent conditions. Only use bud when have symptooms. No need to take every day.
capuchinJoined Dec 22, 2016
Sat, August 19, 2017 10:26 AM
Reply posted for sis65.
I've been dealing with this for a few years now and my doc also told me (and I read) that no diet would change matters in general or slow down a flare. I thought that didn't seem right but I found out it was true.
When my Crohn's first started (and before official diagnosis) I was so miserable; constant watery diarrhea. I was weak, in pain (muscles, joints ... it made my fibrmyaglia so much worse!) no appetite at all but yet -- and I think this is what I hate about it the most -- I would get (and get now with my most current flare up) these awful, acidic hunger type pangs. They are terrible because 1) I am not really hungry and 2) the thought of food, even things I used to like disgust me.
Anyway back to the point, when it first started I basically went on a clear liquid diet for nearly two months. It was all I could tolerate, broths, light juices, water some gelatins etc. As time went on I started adding foods back in one at a time to test how they affected me or not; carbs, dairy, coffee. Nothing made me better or worse really with the exception of certain red meat.
I say certain because it is not all the same, for example: If I eat a burger (whether fast food, gourmet restaurant or homemade) that's it, game over! I may as well pack some things and move into the bathroom. The same goes for a steak. B U T...I can eat roast beef and beef stew and meat loaf etc. without a problem 
WT#?
My point is -- and this may be just my own personal experience -- that what I eat doesn't seem to matter, ever. I can eat any given food (with the exception of burgers & steaks) and not have a problem, then all of a sudden I will have a problem with that food ... until I don't anymore. It sounds nuts, and trying to explain this to people... out loud... make me sound like a rambling loon! I probably have most of the readers here scratching their heads thinking the same thing. Perhaps someone else here understand though. Perhaps the OP understands. I feel your pain!
sis65
Joined Aug 19, 2017
Tue, August 01, 2017 10:32 AM
Reply posted for capuchin.
I think it is absurd to say no need for colonoscopies because UC/Crohn's doesn't increase cancer risk. It doesn't decrease it either.
charbsJoined Oct 31, 2016
Wed, July 26, 2017 4:20 AM
Reply posted for bananascutie.
Important addition to my previous reply:
I do occasionally have en episode of watery diarhea that can reuin my day if I had episode while driving or not able to get to a toilet in time. For this i keep an emergency kit with me at all times. It consists of budesonide 3mg ( get on canadapharmacy,com for $1/ capsuel, need prescription) and lomotil. I take no medication daily as research shows they do not prevent anything. But lomotil stops diarhea asap. Budesonide is if I have a major download and think it will continue all day. I take one/day until guts feel normal.Has no side effects as prednisone does.
capuchinJoined Dec 22, 2016
Wed, July 26, 2017 3:52 AM
Reply posted for bananascutie.
Hello. I am a dentist and ex vet pilot. I also write books on medicine. I have UC/chrons. I have visited many physicians and have concluded the following: specialists are use less. They will save your life but cannot manage your daily quality of life. Search for a family physician until you find one who works with you. A recent Baylor U med school study evaluated thousands of papers on the subjuct of uc/chrons. Conclusion, nothing ( diet or medicine) can prevent a flare up. Eat small amounts of whatever you like. Anit fungals have been found to have the most benefit as it was thought lack of bacteria caused our symptoms, now it is an abundance of candidiasis. Nystatin works best for me, but candidase can be bought on walmart.com and works as well.
I recently solved a big financial problem I had a result of my UC/chrons. I have never felt better since my flare up. Conclusion, a good outlook on life seems to help people. I dont know how to artificially make this occur. I have a low red blood cell count so take iron, b12 , and potassium, magnesium and zinc supplements. Works for me. No need for colonoscopies as colin cancer risk is not lessened by colonoscopies. You know what you have, tell the gi specialists to take a hike.
Use laxatives to get your stomach to empty if you get hiccups or reflux. Good luck
capuchinJoined Dec 22, 2016
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