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Easing the symptoms interview enquiry


Mon, December 11, 2017 6:50 AM

I'm a trainee journalist at Bournemouth University with Crohn's Disease and am putting together a radio feature on whether there is any truth behind if leisure activities such as football or music can have unknown health benefits on people with IBD. If you or anyone you know would be up for talking to me and helping raise awareness, please let me know! Many thanks, Stephen Wright.

FPO sdwright2015
Joined Dec 11, 2017

Mon, March 05, 2018 1:44 PM

Reply posted for charbs.

I have collagenous colitis and I find that  the following things help somewhat but do not make my spasms go away entirely: relaxing with music, meditation , deep breathing, and going on a semi - liquid diet for a week or two to give the intestines a rest  ; i.e. soup with a slice of bread or crackers, jello, juice, popsicles ,  herbal tea, apple sauce, more jello, a little pop with the bubbles stirred out of it ( not too much pop/soda cuz the bubbles cause gas), and toast with jelly. All breads, cookies, crackers, etc. that I eat are gluten and dairy free, in fact everything I eat is GF. Then I slowly add chicken, rice, canned peaches, a few veggies (not too much fiber yet as it makes things worse when I am in an attack), and more jello.Soy based or rice based ice cream is OK too , just not too much cause of the high fat content. Good Luck. 

FPO nancyt
Joined Mar 26, 2010

Thu, January 04, 2018 3:38 PM

Reply posted for sdwright2015.

I don't know if you're still looking for people but I would be willing to participate.

FPO cyndll2
Joined Jan 4, 2018

Sat, December 23, 2017 12:44 PM

Reply posted for sdwright2015.

IBDf seems to travel in a sine wave. At the top youi have a flare up and bloody dairhea. At the bottom you have constipation. If you happen to be in the lower wave , whatever you are doing you attribute to helping stop your flare up. Baylor U medical school internal med school recently published a paper concluding that after reviewing 40,000 papers on IBD, there is nothing that will delay or stop a flare up.

When in the constipation phase take laxatives to get your large intestine going. When in the diarhea phase take candidase and budesonide.

Those will only help with symptoms.

All of us are searching for a magic bullet which i think does not exist.

FPO capuchin
Joined Dec 22, 2016

Mon, December 11, 2017 8:01 PM

Reply posted for sdwright2015.

UC and Crohn’s effects everyone differently, and various treatments work with various degrees of success.  Also, both diseases can go into remission at any time, for no apparent reason.  If you scan this website, you’ll see all kinds of things that have apparently helped lessen symptoms or cure the disease.  Lifestyle and diet changes seem to work for some, but I’ve never heard of soccer or music doing so, except under the theme of reducing stress, which does sometimes help.

FPO charbs
Joined Oct 31, 2016

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