Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Having a Tough Time w/ Crohn's Colitis

Tue, October 30, 2018 11:19 AM

Hi! My name is Georgia. I am fifteen, and I have only been diagnosed with Crohn's colitis since May of this year. I have a hard time staying at school with all of the pain I am in and I go to the emergency room at least once a month. LAtely, I have been taking Humira every week instead of every other, and I also have an IUD to help with menstrual symptoms.

I am tired of laying in bed all day drinking Coke, which so far is the only thing I've found that helps. How do y'all deal with your pain?

georgiachristie
Joined Nov 1, 2018

Thu, December 13, 2018 2:20 PM

Reply posted for georgiachristie.

I was so sick my first couple years that I flunked out of high school. I was able to finish high school late, then went on to college. I graduated with a bachelor's degree, and now I'm in graduate school. Don't let the disease get the better of you. It's awful sometimes, so take things at your own pace. Slow and steady wins the race ;) As for the pain, I mostly just bare it and try not to let it show (and sometimes sleep off).

davidmmulder
Joined Dec 13, 2018

Wed, December 12, 2018 9:05 AM

Reply posted for georgiachristie.

Hi. I've been diagnosed with crohn's colitis also just recently. I have found that drinking herbal teas have helped me tremendously with my symptoms and flares. I usually dring a ginger turmeric tea or a honey turmeric tea. Try them and see if they help.

ladyross
Joined Dec 5, 2018

Thu, November 01, 2018 12:18 PM

Reply posted for InnerState.

p.s.
Aloe juice and probiotics can sometimes help. Avoid sugar and caffeine!
My last line of defense for pain is: slippery elm powder, mixed with water. It will coat your insides for severe pain/immediate relief.

InnerState
Joined Nov 1, 2018

Thu, November 01, 2018 12:10 PM

Reply posted for georgiachristie.

Hi Georgia, Humira is an immune blocker. It affects the disease and your healthy body parts equally. Focus on diet and exercise to help your body recover/maintain from the meds side effects. The coke is feeding the disease like heroin. Feels good because that's what it wants but, not what it needs. Pain meds can be equally bad. They stop the pain but, it only grows worse with time. Having a painful flare atm too. Season change often does it to me. Hope you feel better soon. Best of luck!

InnerState
Joined Nov 1, 2018

Related Topics

Crohns without major symp...

Aspringer
Joined Nov 4, 2020

30 years ago I was diagnosed with Crohns. This is ....

read more

Wish I could just give up...

Jinxed
Joined Feb 28, 2021

I have had UC for over 40 years. Been thru a lot, ....

read more

Joint pain

muleroof
Joined Sep 19, 2021

I've had migrating arthritic pains in th....

read more

Welcome to the Crohn's & Colitis Community!

This website is associated with CCFA.org and is supported by an educational grant from AbbVie.

Please read our Top 12 Rules before posting messages and sharing stories. Always be courteous and sensitive to others!

Intended audience. The Crohn's & Colitis Foundation Online Community is intended for patients and their caregivers, family and friends. The Community is not intended for industry representatives or advertisers and these individuals are not permitted to participate on the site.

Meet the Crohn's & Colitis Community! Browse our site to see what our community is talking about and find issues important to you.

Join in and share your stories. After you feel comfortable with our site, register to share your thoughts on a regular basis.

Stay secure. Remember that our site can be viewed by anyone on the Internet. With the exception of our registration and personal pages, search engines are available within this site. To guard your privacy, follow these simple rules: do not share your address, phone number, details about your family, or anything else you would feel uncomfortable with others reading. If you post your personal email, be aware that you may receive spam e-mail from spammers who gather addresses off of the web.

Read and react to posts with care. If you don’t agree or are offended by someone’s post, take a step back and think before you reply. Since we can’t talk in-person to each other, we must recognize that we may be misunderstanding stories or posts. Please be sensitive to others’ feelings and ask for clarification before acting out.

Search before starting new topics. To keep our message boards easy to use, please use the search bar to locate topics of interest before starting a new thread. If you start a new thread, please use obvious subject headings and words that will catch the attention of others. Topics will be archived after 21 days of inactivity. To view past topics and posts, click on archive topics within each of the forums.

Stick to our guidelines. To keep this site safe for everyone, please do not post: doctors' names, treatment facility names and treatment specifics, contact information for others without their consent, links to websites with uncertain content or advertisements, requests for fundraising, items for sale, requests for study, survey and/or questionnaire participation or provocative information.

Sharing photos. Please use good taste and appropriate images when adding photos to your profile or personal stories. Photos should be in .jpg format.

Not following the rules? Crohn's & Colitis Community moderators routinely scan the message boards and will delete tasteless posts. If you post inappropriate messages or pictures or use offensive language in a post on multiple occasions, you will be notified via email and your account will be inactivated.

Report foul play. Help the Crohn's & Colitis Community moderators by reporting anyone that posts inappropriate messages or pictures by clicking the 'Report Abuse' button under the message or emailing ccfacommunity@ccfa.org.

Questions or concerns? Please feel free to email us at ccfacommunity@ccfa.org with any questions or concerns. We want you to feel comfortable here.

Terms & Conditions. By posting your story, questions, concerns and other information on the Community, you grant the Crohn's & Colitis Foundation or its authorized agent permission to publish, reproduce, record and use your stories as Crohn's & Colitis Community or the authorized agent sees fit in any medium or forum in a manner which helps to further the Crohn's & Colitis Community mission. You agree to release and hold harmless Crohn's & Colitis Community from any and all liability by any third party that may arise from the release of information to any third party or by any third party and agree that all text and other content made by you, for you or the person for whom you are the parent/guardian, shall be the exclusive property of Crohn's & Colitis Community. The Crohn's & Colitis Community cannot verify every claim made by a third party contributor to our Community and is not responsible for the authenticity of information posted.

Thank you! The Crohn's & Colitis Community is successful because of members like you!

Thanks!
The Crohn's & Colitis Community Team

*Any postings on the Crohn's & Colitis Community site should not replace your physician's advice. Always check with your personal physician before taking any action regarding your health.