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No medicines have worked on me. I am living with the burden of trying to be "normal" while wracked with symptoms. The symptom that bugs me the most (& is hardest to cope with) is immediate diarrhea after one or two bites of food. Does anyone else have this and know why? The D at other times of the day is horrible too but is one that I can clearly identify a pattern. I've made a program to analyze my food and health logs and this is one that has a definite effect. I just want the cause. 1. It's not related to specific foods. I keep extensive food diaries, I've done every elimination diet/ SCD / FODMAP/ AUTO IMMUNE PROTOCOL KETO. I am very educated about allergies and triggers so please don't answer with "it must be what your eating". 2. It has nothing to do with the temperature of the food. Happens with all temps of food. 3. It happens if I drink fluids with the meal or not. I only drink distilled water, nothing else. 4. Not meal size. I barely eat. I never have a meal bigger than my palm. I weigh 100lbs to prove it (I'm only 5'2 so that's skinny but ok) I'm looking for a specific reason. I've asked MANY medical professionals and I keep getting answers like " that's just what happens" or "there's no specific reason." Sorry but that's just plain stupid. I am looking for a physiological definition. The exact process that makes me have diarrhea. It's impossible not to have one. Has anyone else had this problem and found out why? I've researched Gastric dumping- where food moves too fast but that takes 10-30 mins, I'm talking the first 1-3 minutes of eating. SIBO still takes 30 minutes to 1hr. I thought for a minute my stomach must be sitting on part of my intestines that are inflammed but got a CAT scan and saw that my stomach is only the size of a very small apple and way far away from large intestine where my inflammation is. Trying to understand actual process. Like for instance, does food hit my stomach and set off contractions or shock to my damaged colon? I don't have small intestine problem so that doesn't make sense but I am looking for an actual physiological explanation. I'd just like to know if anyone else has this and has figured it out. I'm sick of being a prisoner to this disease and determined to beat it. I've been diagnosed since 2000, and in acute flare for 6 years and I'm getting very sick of being sick. Would really appreciate your help!

Reply posted for lydclrk.

Regarding tincture of opium, I do live in the US, in the conservative Midwest. When my doctor, who had a poor command of English, told me he was prescribing tincture of opium he told me, “don’t worry, it not opium....it morphine!”

Reply posted for lydclrk.

My gastroenterologists are Chinese and have no problem prescribing tincture of opium. Chain drugstores won’t touch it but a compounding pharmacy will.  It is well known that opiates bind you up.

Reply posted for lydclrk.

Dear FPO, I watch my son go through the same thing.  I am also searching for something to help him.  He is now down to 70 lbs and I'm so scared.

Reply posted for Crohnnie.

Thanks for your reply.  I have not done a barium swallow, I will look into that.  I've had 4 colonoscopies in the last 6 years and an upper GI but the barium swallow makes sense.


As far as the tincture of opium.  I am guessing that you are not in the United States. Our doctors here have gone crazy about prescribing any "opiate", even our pharmacies will choose not to fill them and turn you away like you are a street junkie.  It is terrible.  


There is mountains of research and testing proving the beneficial effects of opiate's for UC sufferers, IBS, Crohns.  If you look into it, it is much more than "just helping the pain". You digestive system actually has opiate receptors and people with our conditions usually show an interruption with the endorphins to the digestive opiate receptors.  That is why opiates work so well to solve our type of problem.  


Due to the insanity in the US over opiate addiction, most doctors are too scared to prescribe any opiate as frequent prescriptions will tag them as an overprescriber and many doctors have faced charges, court time and even jail.  I have a close friend who is an orthopedic surgeon - specialized in spine surgery.  He got tagged as a heavy prescriber and received a notice and a visit from the FBI - what's he supposed to send people home with after spine surgery? Asprin? He is not going to risk his life long career over it so he prescribes 7 days worth of pills then the patient has to go to a "Pain management Dr." and get the rest of the prescriptions - can you imagine having to get up, get yourself to another Dr. appointment within 7 days of spine surgery?  It's insanity.  Legitimately sick people are suffering because other people chose to abuse drugs.  

So far the "war on opiates" has done nothing to decrease illegal use (99% of addicts were not getting legal prescriptions in the first place.) and the deaths from synthetic opiates like fentenyl have actually increased over 40%.  

Long story short,  my doctor laughed at me when I asked about "tincture of opium or Laudaumn".  He said that he was familiar with it and agreed that it is beneficial but no pharmacy would fill it if he did prescribe it and Gastro Dr. stopped using it years ago becuase of the opium stigma.

Thanks for the advice though.  Health and blessings to you. 

Reply posted for lydclrk.

I’ve had two abdominal surgeries and in both cases nothing to eat or drink for ten days afterward because it would trigger the release of gastric acids. I’ve had eruptions during the middle of dinner.  My doctor prescribed tincture of opium to control the diarrhea, and it works.  You might try some before meals. It’s an expensive drug .i am also on entivyo and it has helped with the diarhea but I still can go from constipated to diarrhea in the blink of an eye.

Reply posted for lydclrk.

There are meds that can be prescribed to slow things down a bit.  Colistipol works really well for me due to scar tissue build up and malabsorption issues, but you have to carefully monitor for blockages while taking it.  When I am symptomatic but not in a flare I think this Med is a miracle drug!

Another one is dicyclomine.  It keeps your gut from spasming so much.

Reply posted for lydclrk.

I think many of us are plagued with this at times.  I have always thought it’s just the process of eating, production of saliva, gastric juices, etc. that trigger our malfunctioning bowels to “GO!”  

Have you ever done a barium swallow or small bowel follow through?  I’ve had a radiologist dub me “the fastest gut in the West.”  A test that typically takes a few hours to follow the barium through my system is done in 20 to 30 minutes.  I think the act of eating or drinking sends my dysfunctional system into hyper-Drive.

not sure.  That’s just my thoughts on the subject.