That gnawing feeling...
Sun, March 17, 2019 8:45 PM
I'm new here (and far from home) so I'd like to start off by saying hello then I'll go on to identify the issues I've been having specifically over the past 77 days. It all begun with a bout of flu I caught at the start of the year, the 1st Jan 2019. Unfortunately, this flu soon progressed to pneumonia around a week later and a week after that, 'severe' IBD symptoms and the hell that followed with it. There's been cacophony to it all and I dont mean the good kind. Whether it's the unrelenting pain (centred on small intestine but not singly there) that's never coy about visiting as soon as my eyes' open in the mornings and like all bad house guests, won't leave, to the double digit toilet runs where the most exciting thing I have to look forward to is...not going? Or fever, joint pains, skin lesions, inflamed eyes, sickness, tiredness, swelling, vitimin deficency and weight loss. The weight loss was the one that got me. Seem's I've lost 10% of my body mass in 6-8 weeks. A considerable amount to lose when I was 9 1/2 stone to begin with. In fact I'm dreading my next weigh in but that's a whole other issue.
Now the thing that's really been bothering me is getting this diagnosed. I've had serious disagreements with my doc previously (he's on-side now but I literally had to force it) but I know it's IBD because it fits not only current ongoing symptoms but historic problems I've had too stretching back 5 years. I've had numerous visits to my doc recently but the tests are coming back normal. CRP, calprotectin, thyroid, liver, kidneys and FBC all normal with slight indication of inflamation. I do have a specialist appointment but it's a month away atm and I'm seriously worried about the state I'll be in by that time. That's why I'm here I suppose. Guess I just need to hear this is common with IBD from people who actually have it. Please tell me it's common? Any other advice would be most welcome too.
Almost forgot but meds atm consist of codeine phosphate, meberverine, vit D, loperamide and lansoprazole.
Kind regards and apologies for the short story there. If you took the time to read it then thank you kindly.
Joined Mar 17, 2019
Tue, April 09, 2019 5:37 AM
Reply posted for Ablanch99.
Hello there fellow sufferer! I thank you kindly for replying to my queries and I take heart in what you said. It is indeed comforting and engenders hope to hear I'm not alone and there're others out there who've had similar experiences. I'm very greatful so thank you!
As it happens, I do indeed have a specialist appointment that's little more than a week away so perhaps clarity and a diagnoses will come then...it certainly can't be any worse than the previous 100 days of debilitating illness and the horde that comes with it.
Personally, I have no doubt this is Crohns and two hospital visits since my first posting only hardens my will to see this through. Too much has been lost already not to.
Be well my friend and thanks again.
Regards.
Joined Mar 17, 2019
Mon, April 01, 2019 11:34 PM
Reply posted for Elroyahab.
Hey,
I'm new here too, living in Canada and it took ages for me to get a diagnosis. It was a year before I had a name for the pain, fatigue, diarrhea, and weight loss. After every bloodwork and test came back negative I thought I must be crazy.
Luckily I was able to get into a specialist who did the right tests and diagnosed ,e with Crohns.
My disease is high up in the small intestine so not visible through a colonoscopy, but they were able to see narrowed intestine with a small bowel follow through test which combined with a high white cell blood count pointed them to the dx, which led to surgery and 24cm of small intestines being removed.
I hope you get a diagnosis soon - you may have to keep pushing your doctor for answers, which sucks, but you know your body better than anyone else so keep fighting.
Ablanch99Joined Apr 1, 2019
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