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Fatigue (either med-induced or flare-induced)

Fri, May 17, 2019 2:22 AM

Hi everyone! I’m new here and wanted to join because I don’t really know people in real life with UC and so I don’t have anyone with experience to turn to for guidance. Has anyone had an issue with fatigue? My mild flare caused me a lot of fatigue, but after I recently started Uceris, I’ve just been tired for most of the day (I start getting tired a couple of hours after waking up and have to take 2+ hour naps midday). Does anyone have tips for how to manage this? My finals are coming up and studying has been a struggle.

Thanks so much!

pirateprincess
Joined May 17, 2019

Mon, July 22, 2019 2:27 AM

Reply posted for pirateprincess.

Hello, I know this reply is a bit late, but I hope your finals went well! I'm 24 years old and was diagnosed with Crohn's a few months ago after a pretty major complication that stuck me in the hospital for emergency surgery. Although I've only been diagnosed for a short time, my doctor thinks that my condition has been there for a few years now, hidden by particularly vague symptoms that other doctors wrote off as stress from grad school. I'm not sure if you're in school still, but my best advice for beating the fatigue in that environment is to listen to your body and establish a routine. For example, I got up early to get my bathroom routine done before my morning classes. I left my afternoons between 2 and 4 open so that I could take a nap, and then signed up for an evening class or two instead. This was the best schedule that I could find for me, considering afternoons are the worst time of day for my energy levels. I would also suggest letting your professors know privately what's going on, going into as much detail as you feel comfortable with. Many will be more likely to work with you during flare-ups or particularly bad days if you just explain what's happening. Good luck, and I hope this was helpful for you.

Auroraleeann13
Joined Jul 22, 2019

Mon, June 17, 2019 9:02 PM

Reply posted for pirateprincess.

I was diagnosed with UC 25 years ago. I know this isnt easy but you have to force yourself to live your life. My fatigue started mild and now 25 years later can sometimes be debilitating. I was diagnosed with type 2 diabetes 5 years ago and that is when the fatigue became unbearable. Take care of you, eat what you can easily digest, exercise, and get your rest! I recommend trying vitamin B supplements, taking probiotics, and being very diligent with planning your time. I'm on a lengthy list of supplements that I dont think I could live without. Know you aren't alone!

TLC2015
Joined Jun 17, 2019

Sun, May 19, 2019 9:16 AM

Reply posted for pirateprincess.

After 18 years in remission my uc has returned . It has been a year and a half trying different meds and different things to get it back into remission . I too suffer from fatigue . Most days I just have to push through it . I do find that if I do some exercise on a daily basis I do feel better afterwards .I think it is a matter of knowing my limits and pushing myself just a little bit more every day . I am taking double dose of simponi which adds to the fatigue . The daily exercise, even just 10 or 15 minutes a day seems to help .

Joyjoy
Joined May 19, 2019

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