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Is brain fog real for those of you with UC?


Sat, July 13, 2019 7:06 AM

I remember sitting in the hospital during my first an worst flare not wanting to think or move. The move part came from the fact I had to run to the bathroom but I would sit there for hours because I couldn’t get myself to consentrate. I’ve always had a great attention span, I was never forgetful, and I was not ever distracted when engaging in a deep conversation. After I got out of the hospital I have times that I’m overwhelmed like my head will feel like it wants to explode if there’s too much information going on. I have anxiety meds for when I can feel it’s coming from being anxious, but there’s time I can tell I’m not anxious I’m just in a fog and I can’t climb out. I get very iritable and snap on my loved ones when I’m in this state and they say any little thing. I don’t know if this is just underlying anxiety from my UC or brain fog. According to google, brain fog is a real thing for people with UC. But you can never 100% trust google, so I wanted to ask some of you if you exeperieced brain fog? And how you dealt with it?

FPO Dfaciolince
Joined Jul 13, 2019

Wed, July 17, 2019 2:18 PM

Reply posted for Dfaciolince.

I get horrific, hella fog when I'm fatigued. And the fatigue is definitely from the UC.

Fatigue is the first symptom that I'm coming into a flare, my canary in the coal mine. And when I have fatigue, I feel like I'm basically a zomibe, like I am seeing the world through deep water, like my whole self is just gone. It's absolutely horrible.

Sometimes I literally can't remember things that happened when I was fatigued, or barely remember them. I've had to tell my partner that we shouldn't talk about anything important when I'm fatigued. If I say "the f-word," it needs to be simple and light until it passes.


FPO Rufous
Joined Jul 19, 2019

Tue, July 16, 2019 12:40 AM

Reply posted for dnjrrt72.

Yes I was on heavy doses of prednisone, but I’m off now. I’m on Remicade and it has brought me into remission. I feel like the “fog” was def worst when I was on the steroids and flaring but I do at times feel that overwhelmed sense of what just happened 30 seconds prior like your son expresses feeling. Is he on steroids right now?

FPO Dfaciolince
Joined Jul 13, 2019

Sun, July 14, 2019 5:49 PM

Reply posted for Dfaciolince.

Were you taking steroids? That MIGHT be why.

My son is 23 & was diagnosed with ulcerative colitis last year. He was telling me about these episodes he’s been having where he’ll just disappear for 30 seconds or more. Just goes bye-bye & has no clue what the hell he was just talking about, what the other person was saying, etc.... Weird.

FPO dnjrrt72
Joined Jul 14, 2019

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