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Ulcerative Chlorites - Entyvio not working


Fri, November 19, 2021 10:33 AM

I've been on Entyvio for 10 months & it was perfect!  Then in June I had my 1st flare on Entyvio, steroid yo-yo since then (6/2021). I've had the COVID vaccine in (4/2021) with no issues (moderna). 


dr wants me to start on 6MP & still do Entyvio if it will work. I'm scared to use a general immune suppressive med (6MP). But still using steroids as a bridge to see if 6MP will work (takes 6 months to work).  So possibly steroid bridge for approx another 5 months, (total of 11 months).  


Currently I can't get my COVID vaccine booster until off the steroid bridge.  I have a dr apt on Monday to discuss alternative options. 
 

Anyone else having/had issues - advice?

I'm 47, retired & was diagnosed in 2018.


 

FPO MauiOnMyMind
Joined Nov 19, 2021

Thu, November 25, 2021 6:14 AM

Reply posted for MauiOnMyMind.

UPDATE on the vaccine front!  


I got the flu shot (can still do with being on prednisone)!  One less concern.


As for the COVID booster, I wanted to know WHY they said "NO" as long as I'm on prednisone. Dr says the COVID booster will work, at anytime, however.....for it to be the best & longest lasting I need to be off steroids or atleast be on 10mg only, not the 30 I'm on now. So....December 22nd is my date. I'm doing everything I can to be good, stay healthy, do exactly as dr ordered so I can get it!

Anything we can do to stay safe with autoimmune diseases now I'll take. 

FPO MauiOnMyMind
Joined Nov 19, 2021

Thu, November 25, 2021 6:06 AM

Reply posted for Teddybear71.

TY so much!  Saw dr, since Entyvio is my 1st biologic, he reassured me we have a lot of options still, so.....trying 6MP for the next 2 months w/ Entyvio. Hopefully in the next month I can wean off prednisone & the 6MP will be doing its job. If not.....Remicade might be our next option. 


Speaking of Remicade, are you having any reactions, symptoms, how is your body reacting differently (other than the UC) than Entyvio?  

FPO MauiOnMyMind
Joined Nov 19, 2021

Thu, November 25, 2021 6:06 AM

Reply posted for Teddybear71.

TY so much!  Saw dr, since Entyvio is my 1st biologic, he reassured me we have a lot of options still, so.....trying 6MP for the next 2 months w/ Entyvio. Hopefully in the next month I can wean off prednisone & the 6MP will be doing its job. If not.....Remicade might be our next option. 


Speaking of Remicade, are you having any reactions, symptoms, how is your body reacting differently (other than the UC) than Entyvio?  

FPO MauiOnMyMind
Joined Nov 19, 2021

Sun, November 21, 2021 12:13 AM

Reply posted for MauiOnMyMind.

I also was on Entyvio and it worked for a little more than a year. Then I started having flare ups and was on and off budesonide so many times that my doctor decided a switch of meds was needed. I am now on Remicade and have been for about 9 months, so far it seems to be working for me. Good luck, I hope you find something that works for you.

FPO Teddybear71
Joined Nov 21, 2019

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