Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Keep J Pouch or go back to ostomy

Tue, September 10, 2019 8:40 PM


I’m currently 19. I was diagnosed at 17 in April 2018. In August 2018 I had an emergency colectomy. In October 2018 and December 2018 I had the next 2 surgeries to complete my J Pouch surgery. I’ve had mixed feelings about my J Pouch. After having recurring pouchitis (3 or 4 since January 2019) and cuffitis (2 since July 2019) I’m beginning to wonder if a J Pouch is really worth it. These cases aren’t that bad but they get exhausting after a while, especially when the treatment for each one takes anywhere from 2 weeks to a month before everything’s back to normal again. My J Pouch when it’s operating well operates very well: 2-4 BMs a day, 1 at night. But these recurrent problems are really putting me off of it. 

Basically my question is: Does anybody have any experience with a voluntary reversal back to an ileostomy? There is no pouch failure (yet), and my surgeon has only brought up the idea of a reversal once, but it’s very hard to go on like this, especially with the school year starting. It’s hard to go to class and study when I have to run to the bathroom every 20 minutes. 


FPO Anna1298
Joined Sep 10, 2019

Related Topics

Seton Placement
Author Image Ethan
Joined May 18, 2019

Had my second seton placed 2 weeks ago and I'm....

read more

Partial Resection for UC
Author Image robinson4a
Joined Aug 22, 2019

My husband has UC and is on Remicade and Methotrex....

read more

Author Image Mitzi
Joined Sep 18, 2019

Ok so my husband has been in hospital for 3 weeks ....

read more