Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.
I’m currently 19. I was diagnosed at 17 in April 2018. In August 2018 I had an emergency colectomy. In October 2018 and December 2018 I had the next 2 surgeries to complete my J Pouch surgery. I’ve had mixed feelings about my J Pouch. After having recurring pouchitis (3 or 4 since January 2019) and cuffitis (2 since July 2019) I’m beginning to wonder if a J Pouch is really worth it. These cases aren’t that bad but they get exhausting after a while, especially when the treatment for each one takes anywhere from 2 weeks to a month before everything’s back to normal again. My J Pouch when it’s operating well operates very well: 2-4 BMs a day, 1 at night. But these recurrent problems are really putting me off of it.
Basically my question is: Does anybody have any experience with a voluntary reversal back to an ileostomy? There is no pouch failure (yet), and my surgeon has only brought up the idea of a reversal once, but it’s very hard to go on like this, especially with the school year starting. It’s hard to go to class and study when I have to run to the bathroom every 20 minutes.