Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Surgery


Wed, September 18, 2019 2:50 PM

Ok so my husband has been in hospital for 3 weeks now due to his colitis. medication stoped working . hes not responding to steroids or any other meds .. They are saying our only option is surgery. They are talking about removing his colon and giving him an otsomy and at some point reconnecting and useing some of his bowel to form a pouch to help regulate his movements ... He is going 20 to 30 times a day at this point .. Q. Has any one had this surgery.. Q. How did it change ur symptoms... Q. Has it improved ur life ... Q. How many time and how often do. u have to go.. Q. Do you work how has it affected. Ur job .. Q. What is the best way to help. someone come to terms with this.

FPO Mitzi
Joined Sep 18, 2019

Fri, September 20, 2019 9:14 AM

Reply posted for Mitzi.

I’ve had the surgery.  It’s a big deal. Make sure you go somewhere they do this surgery all the time. Takes about a year to fully heal. There are sometimes problems with the j pouch. They call it pouchitis. Once you heal up you go pretty much like you used to. 

FPO charbs
Joined Oct 31, 2016

Fri, September 20, 2019 9:14 AM

Reply posted for Mitzi.

I’ve had the surgery.  It’s a big deal. Make sure you go somewhere they do this surgery all the time. Takes about a year to fully heal. There are sometimes problems with the j pouch. They call it pouchitis. Once you heal up you go pretty much like you used to. 

FPO charbs
Joined Oct 31, 2016

Related Topics

If you could go back?
Author Image Jaime143
Joined Sep 29, 2019

Hi I'm recently diagnosed with crohn's in my small....

read more

Anyone just skip all meds...
Author Image Jaime143
Joined Sep 29, 2019

I have crohn's in my small bowel. I am in pain da....

read more

Reconnection after total ...
Author Image Chrisdinhsk8
Joined Oct 15, 2019

Hello everyone! This is my first post but i wanted....

read more