Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Narrowing of the small intestines


Wed, December 18, 2019 5:34 PM

Does anyone know if 4cm is a lot of narrowing in the terminal ileium or small intestines.  I have three spots that are narrowin.

FPO angd1978
Joined Jan 1, 2016

Wed, April 29, 2020 12:36 AM

Reply posted for hallstigerts.

I had resectioning done when I was 26 (I'm 53 now) and was in remission up until about a yr ago. I had 1 foot of large colon and 6 in of small colon removed right at the cecum. I was not given a choice to not have surgery due to the extent of inflammation and damage, it had to be removed. It gave me right at 28yrs of remission! Now it has come back in three different areas, unfortunately.

FPO wsbridge25
Joined Apr 29, 2020

Thu, April 16, 2020 9:09 AM

Reply posted for hallstigerts.

Hi. No I've never had a resection. I did have a temporary (ended up over a year) ileostomy for fistula surgery.

FPO OldCrohn
Joined Feb 26, 2020

Mon, April 13, 2020 10:56 PM

Reply posted for OldCrohn.

Have you had resectioning of your terminal ileum, OldCrohn? I'm looking at resection surgery for mine and I'm interested in hearing others' experiences.

FPO hallstigerts
Joined Apr 13, 2020

Wed, February 26, 2020 1:59 PM

Reply posted for OldCrohn.

Sorry, just noticed the cm vs mm measurement. Are you referring to the length of the narrow section or the diameter?

FPO OldCrohn
Joined Feb 26, 2020

Wed, February 26, 2020 1:56 PM

Reply posted for angd1978.

Hi. Yes that does seem narrow. My doctor seems quite concerned with my narrowing to 5mm and has performed balloon dilations up to 10-12mm during colonoscopies over the last three years. 

FPO OldCrohn
Joined Feb 26, 2020

Related Topics

Small bowel resection
Author Image jess123
Joined Jan 9, 2022

Hi, I'm preparing to have an ileocecal resecti....

read more

Flap Surgery
Author Image Kwarner1charter
Joined Feb 14, 2023

Had surgery on 10/27 after being in the hospital m....

read more

Jpouch Surgery
Author Image guillermo80
Joined Oct 11, 2016

I just had my first surgery out of three stage sur....

read more