Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Colon removal

Mon, August 02, 2021 9:49 PM

I have UC. Diagnossed on 98'. Was a smoker all those years but quit in 2019. 3 weeks later was in a full blown flare up. Spent 10 days in the hosptal, disability for 5 months. Was prescribed Humira and Mercaptopurine. Finally got off Mercaptopurine... was doing alright for about 18 months. Another flare up and lots of pain again. No hospitalization this time but on disability again. Adjusting Humira but very frustrated. Am strongly considering colon removal and looking for others that have been where I am mentally/emotionally and if they made the decision I am considering and how they feel about their decision. I am a 56 year old male. 

FPO MrBaskom280
Joined Aug 2, 2021

Wed, August 11, 2021 6:50 AM

Reply posted for MrBaskom280.

I am have had the colon removal and j pouch surgery (i am 51). Fisrt off before the surgery I could barely leave my house or the closeness of a bathroom, so my quality of life was very poor. There are alot of things to consider. I read about the complications and potential issues ( and not to mention the medcal bills), in all honesty i didn't think I would be where I am today. My life is much better and would do the surgery again if given the choice again. I do have a lot of issues, I have chronic pouchitis and have been on antiboitics for far too long. I have tried all kinds of diets and probiotics but still can't get things worked out. Somedays I am in the bathroom 15-20 time s aday (3-6 times at night). Sometimes I do have a couple of days where the stars align and I have almost normal days 3-6 bathroom trips.Those days are not as many as I had hoped. I am 2 years past the j pouch surgery. I have to say some days I am so tired and drained. This is just my expirence, I know many others have had more positve outcomes.

FPO Davidg
Joined Jul 1, 2020

Related Topics

Ileostomy reversal - Plea...
Author Image ceehand
Joined Apr 30, 2020

Hello, Recently, I had a colectomy (due to Croh....

read more

Author Image Patricia94
Joined Aug 3, 2019

Hi, I am a 25 year old, I was diagnosed with a ....

read more

Bowel Surgery + Skin Heal...
Author Image Desjackson22
Joined Sep 7, 2020

Has anybody noticed that your skin ages much quick....

read more