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Exhausted and hopeless


Tue, April 30, 2019 5:09 AM

Reply posted for Mrscarolmills86.

I’m sorry for your trials and hope things get better soon so you both can have relief. I have a 4 year old daughter who was diagnosed with Chron’s in the end of January. She is doing ok now after a long dose of steroids and now on Imuran. She is off steroids and just on Imuran and we’re hoping and praying the Imuran works for her, but she has a little inflammation back on her blood tests so we may have to put her back on steroids again which we don’t want to do again so soon.
I haven’t tried their sessions since we are early in our daughter’s diagnosis and trusting in her GI’s treatments, but this FB page has a lot of stories of success and is a helpful forum too.

https://www.facebook.com/groups/137907716855107/?ref=share

There is a young father with severe Chrons (Tyler Walsh) on the page who did their sessions with great success. Basically with their sessions he found out what his nutrient deficiencies were, found supplements to help with the deficiencies he had and found food triggers and avoids them and now he is doing much much better.

FPO Tiffanyandko
Joined Apr 30, 2019

Wed, August 05, 2020 7:54 PM

Reply posted for Hwenz.

I completely relate to this comment (late response but I just joined and was reading through some forums). Especially when you mentioned wanting to leave during your partner's mood swings. I only recently (within the last year) started dating someone with Crohn's, and between his "normal" pains, opioid withdrawals and steroid symptoms, it has been the cliche roller coaster everyone always talks about. 

I want to be supportive of him, but it feels so hard when all he does is push me away at times. This then causes me to shut down and get into my own moods, feeling neglected, unwanted, unappreciated, etc. (I have my own mental illnesses, so this does not help--not that it's about me, of course.)

If you're still getting notifications about this thread, do you have any advice for anyone else going through this? I've read lots of articles and forums online but I'm hoping to find a strong community that cares to help me through the whole process.

FPO edallmann19
Joined Aug 5, 2020

Mon, April 13, 2020 10:45 PM

Reply posted for Mrscarolmills86.

Oh, mama - that sounds beyond, beyond. It sounds like you've thrown yourself into the machine to keep it running and it's grinding you to bits. We're a year out as of this posting; how are you doing? I could only imagine how the emergence of the pandemic is taking a toll on your family now. Have you been able to locate help? There's no way you can maintain this pace on your own; that is too much stress and responsibility for one person.

FPO hallstigerts
Joined Apr 13, 2020

Mon, April 13, 2020 11:34 AM

Reply posted for Mrscarolmills86.

It sounds like a lot to handle. You might seek support from a non-profit that provides respite care, for yourself. Has you husband ever considered trying medical mj? It can be used for inflammation. I think it was helping my son until he decided he couldn't afford it anymore. Traditional doctor's won't support it, they shamed my son for trying it.

FPO LMJ
Joined Sep 3, 2019

Tue, December 31, 2019 7:09 PM

Reply posted for Mrscarolmills86.

I am really sorry to hear this. I want you to know that I too feel your pain. My boyfriend stopped responding to his medication and it took months for the doctor to send him for all the tests he needed in order to switch to something new. In the meantime prednisone caused many side effects including mood swings that made me want to just leave. We are currently battling surgery for abscesses, meaning we’ve been spending our holidays in the hospital. I’ve always remembered that “a heart is a heavy burden”. Loving someone hurts especially when youre caring for someone with this awful disease. It is completely normal to feel hopeless and want to run away from it all. Stay strong though, it is worth it in the end. 

FPO Hwenz
Joined Dec 31, 2019

Mon, October 21, 2019 4:40 PM

Reply posted for Mrscarolmills86.

I'm so sorry you are having to weather this storm.  It's a lot.  And you're not selfish for feeling this way.  I encourage you to take a little time each day for yourself.  If you can purchase a notebook, journal or anything you can write in daily, and just take time, even if it's just for a minute, and write down how you're feeling.  It can be something as simple as "I'm so tired today" or "I'm hoping for good news".  Sometimes taking our thoughts out of our head and writing them down does a lot for our pent up stress and worry.  Or take a short (or long) walk with some deep breaths.  If you can check out of your library or listen online any Joyce Meyer material.  She speaks a lot about how we can thrive in difficult circumstances.  Also, don't be afraid to ask for help from family, friends, your church or even a home care agency in your community.  There are programs that could possibly even be free.  But above all I encourage you to remember that this is no surprise to God.  He sees you, He knows you and He has you.  Just trust in His timing and provision for you.  
I'll be praying for you and your family.  I don't have to know you to do that :)

Be well and God Bless you! 

FPO cathifly64
Joined Oct 21, 2019

Sat, August 17, 2019 7:17 AM

Reply posted for Mrscarolmills86.

First of all I would like to appreciate your strength of doing the things by own. Don't lose hope, things will get better soon, just let this time pass on. After reading of this, I just remembered about one of my cousins, who was also depressed because of his husbands mental condition after the retirement. She got fed up with the daily activities and was not even concentrating on other things. Thus she finally decided to take some help from the elder care lawyer ( who came to their home, and took care of his husband and managed everything related to legal aspects)

FPO Sonpatino
Joined Aug 13, 2019

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