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Remicade and Hair Loss


Wed, February 19, 2020 10:15 PM

Hi! I'm new to this page, but hoping to get some advice about Remicade and hair loss. I was diagnosed with Crohn's at 13 years old (now turning 25) and tried various different medications before resorting to Remicade. Once I started Remicade, I was able to live symptom-free for about 6 years with spanning my treatments every 5 weeks (on a pretty high dose). About a year ago, I started noticing pretty severe hair loss and would lose clumps of hair both in and after the shower. It has only gotten worse and now I'm noticing loss of eye brows and eyelashes too. I've gotten all my labwork done and al, besides my ferritin level, came back normal. Once I got iron infusions, I thought the hair loss would slow down, but it has continued with a vengence. I'm considering switching treatment options or potentially discontinuing the Remicade if I can because I'm fearing that I will lose all of my hair. Has anyone had a similar experience with hair loss?

FPO sarahweiner
Joined Feb 19, 2020

Wed, February 26, 2020 1:36 PM

Reply posted for sarahweiner.

Sorry to hear Sarah. I have been on Remicade for 19+ years (starting Entyvio next week) and have not experienced this side effect. 

FPO OldCrohn
Joined Feb 26, 2020

Wed, February 26, 2020 1:35 PM

Reply posted for sarahweiner.

Sorry to hear Sarah. I have been on Remicade for 19+ years (starting Entyvio next week) and have not experienced this side effect. 

FPO OldCrohn
Joined Feb 26, 2020

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