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Suggested Diets/Supplements

Sun, March 10, 2019 3:37 AM

Hi I’m Mel,

I was diagnosed with Crohns in 2015 three months before my college graduation. I have been on several medication most recent one being remicade and numerous diets. I am now in one of my phases where my meds stop working and I am starting to feel completely defeated. Currently I am drinking ‘Soothe Your Tumy
Tea’ and dealing with major stomach cramping/bloating. I have tried low FODMAP, KETO, Paleo, etc. with not much success. I am wondering if anyone has any suggestions on things to try. 

FPO Melb4867
Joined Mar 10, 2019

Tue, May 14, 2019 1:02 PM

Reply posted for Melb4867.

There is a lot quasi-science and pseudo-science that relies heavily on anecdotal evidence for building out an "IBD diet".

Your best bet is to find a Registered Dietitian, preferably one who works specifically with IBD patients (though that may be difficult depending on where you are). An RD can help you figure out your trigger foods and liquids and make sure that what you do tolerate well has a the appropriate nutrients bodies need. Talk to your GI about a referral.

IBD makes it harder for your body to absorb some nutrients, so always work with your medical team to make sure you do not cause more harm as you tweak your diet to suit your specific body.

You may find that your medical team is pretty dismissive that doing anything to your diet can make a difference in IBD (mine was). I have found that it is important to be very firm that working on my diet is something that I want to do, but also that I want to do it *with their help*.

With an RD's monitoring, you might find an elimination diet can help find what works and (more importantly) doesn't work for you. But I would strongly advise against undertaking one of those on your own. There's lots of room for causing more problems without care and attention from someone who specializes in the field.

In general, I think diet changes can help many with IBD. The problem is there is no specific diet change that helps everyone, because our disease is always specific to our own bodies.

FPO djwemlcc
Joined May 14, 2019

Tue, May 07, 2019 11:37 PM

Reply posted for Melb4867.

I think you should try supplements that have already tested and had some great effects. For this, you may search online, definitely, you will get sites that have reviewed various websites.

FPO Salutebellezzao
Joined May 7, 2019

Sun, March 17, 2019 10:09 AM

Reply posted for Melb4867.

Are we talking long term diet or emergency diets during flares? The two are not the same for me. When the pain starts in my gut, I stop eating =/. 24 hours after the spasming pains subside, it's just water for 12 hours to test the sensitivity. If the pains don't start again, chicken, beef, or veggie broth for 12 hours. The longer I can stay away from fiber (anything that grows out of the ground), the more time my system has to recover. Day by day, I start with eggs, lean meat, and fish. If that goes well, low fiber skinned and cooked veggies. Soups are a good place to start with nutrient dense ingredients like spinach, mushrooms, onions. Fruits come last (bananas and melon to start, higher fiber things like berries to end). I stay away from cruciferious (broccoli, cauliflower, asparagus, brussel sprouts, and cabbage) until I feel safe again (a week or two later). Long term, I'm currently working on the specific carbohydrate diet (I tried keto for a bit more than a month while switching from Remicaid to Entyvio and it seemed to help me a lot in terms of keeping inflamation down, maintaining steady energy, and getting restful sleep). And while my system felt better, the stress of keeping keto numbers outweighed the benefits for me. SCD seems to be just as effective but without being as demanding. This is what works for me (ish), but everyone is different. I wish someone had shared their diet experiences with me while I was working through my pain so I hope this gives you a least a little info/perspective.

FPO kirstenhearnes
Joined Mar 14, 2019

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