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Conflicting diets. Strictures/ crohns


Fri, October 30, 2020 1:31 PM

I have strictures and just had a dilation to the only one they could fix without opening me up.  First they say for years no fruit no veg no meat. Ect.  Now they say need fiber.  I just can't deal with this.  I've been on infusions for years now chemo pill mp6 or something just spent 15 days in hospital now home afraid to eat dehydrated weak and just mentally over this. I am grateful and know people have it worse and I want to fight but I find it had to follow a treatment plan that changes every 2 seconds. I just want a list of foods to eat and that's it. Flare ups are getting harder to recover from.  I am not a surgery canadate they will have to remove if not all most of small bowel. Sorry for the big whin. My sister thought if I connected with others I maybeable to cope better 

FPO Kim006rn
Joined Oct 30, 2020

Wed, September 29, 2021 11:57 PM

Reply posted for SMDavis.

This is a big issue for me.  When I was first diagnosed they kept telling me fiber, fruits, veggies--all which were difficult  to digest and at the time extremely painful.  Dx in 5/17, constant pain, bathroom trips, etc. and repeatedly told, "fruits, veggies and lots of fiber."  WRONG! I'm finally in 2021 able to eat salads, fruits and veggies. This is after finding the right meds (for me)-Apriso +Remicade infusions every 6 weeks.  Why are doctors and P.A.'s so out of touch?????

FPO SMDavis
Joined Jan 19, 2020

Mon, March 29, 2021 9:08 AM

Reply posted for Lredon.

Hello,
I understand you are looking for support related to diet, the foundation has several resources on diet https://www.crohnscolitisfoundation.org/diet-and-nutrition  Additionally, I have provided more details and resources below. 

 

Diet and Nutrition

Living with inflammatory bowel disease (IBD) means paying special attention to what you eat. Eating certain foods can help ease your symptoms, while other things you like to eat may make your symptoms worse.
 
Diet Brochure  diet-nutrition-2013-1.pdf (crohnscolitisfoundation.org)

Diet videos What Should I Eat? | Crohn's & Colitis Foundation


FPO administrator
Joined Oct 12, 2017

Fri, March 19, 2021 6:09 PM

Reply posted for Kim006rn.

Most ibd diets are made to avoid flare ups.  There is plenty of science backed evidence of how important prebiotics are to fuel the short chained fatty acids that drive our gut microbiome.  This chrohns colitis  foundation has one link to a diet that is about actual healing the gut.  I highly recommend looking into it,
https://umassmed.edu/nutrition/ibd/ibdaid/

Also on their site they have the following pdf which is a great resource to follow

 https://umassmed.edu/globalassets/nutrition/ibdaid-food-list/foods-list-updated-aug-1.2019.pdf

FPO doman26
Joined Mar 19, 2021

Mon, November 02, 2020 7:18 PM

Reply posted for Kim006rn.

Sorry to hear you are feeling bad. You need to focus on getting you're gut bacteria healthy again. Where do you live? Do you have access to raw milk? I would start on a raw milk diet (must be raw bc of probiotics). Drink about 1.5gallons a day, 5aking a long time to finish every cup. Savor it. Then take oregano oil spirits (herb pharm is good brand), pau'arco spirits, black seed oil. All of those 3x/day. Then take terramin clay minerals with a tsp of activated charcoal powder in the morning and at night. Look at my earlier posts for diet. But you can try to eat scrambled eggs with butter. It would really help if you could get some sourdough starter and start making your own bread. The predigested flour is very good for the body and super easy to digest. You can even make your own in about a week. There are recipes online. Stay away from all foods that are hard to digest like whole grains, seeds, nuts, SUGAR, vegetables.. can try very small amounts of mashed potatoes(very boiled and rinsed). Honey is a great substitute for sugar bc of it's antibacterial properties. But yeah it is very easy to get a sourdough starter and feed it an equal amount of white flour and water (by weight), ferment it 8-10hrs then I have a super easy bread muffin recipe. You use baking soda but I'm guessing you want a super easy thing to make right now. Let me know what questions you have once you get through this.. Bananas are good, also avocadoes. Try sardines in olive oil. Stay away from all vegetable oils like safflower and canola...all of them. They are bad. Use olive oil, butter, or coconut oil

FPO Lredon
Joined May 6, 2020

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