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grandaughter newly diagnosed ?

Thu, October 11, 2018 7:11 AM

firstly, i am in england and had to put an austin zip in the slot as i have a stepson there and really need help....i have found out today that my grandaughter 16 has to have exploratory surgery tomorrow or monday because they think she has crohns, she has been poorly for a year, her lips keep splitting on each side of her mouth and i found out today her vagina and anus are swollen shut and puss is coming out, she has not had a period for a year, i just dont know what to do, i dont know how bad this is and if they can make her well enough to live a normal life, i know nothing about the desease and i am so scared, please can someone reassure me and tell me even worse cases have got manageable..how do we cope with it, we dont have any specialists in england that i can find and i am desperate

cornishprincess
Joined Oct 11, 2018

Wed, October 17, 2018 3:32 PM

Reply posted for administrator.

When you or someone you know has been diagnosed with Crohn’s disease, it is common to have many questions. Many people with Crohn’s Disease lead normal lives. Things get better once patients are on a treatment to manage their disease.
Crohn’s disease affects everyone differently. However, we do have a variety of helpful resources designed to answer many of your questions:

Publications

We have a Guide for Teens that may be helpful for her to review at: http://www.crohnscolitisfoundation.org/assets/pdfs/teenguide.pdf . We also have a teen website at: http://www.justlikemeibd.org/
If you have more specific questions, please email the Help Center at info@crohnscolitisfoundation.org.

administrator
Joined Oct 12, 2017

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