Hello, My 9 year old daughter was just diagnosed with Crohns last week after suffering bloody diarrhea the last 3 months. She received her first infusion of Remicade yesterday. I would like to meet any other families with children diagnosed with this disease as well. I am just learning all I can about this disease through informative sites like this and her doctor, this is all very new to me.
Reply posted for LEGOCAT.
Get off the prednisone as soon as possible. the side effects are awful. It was the only thing that helped my ulcerative colitis, but gave me cataracts and osteoporosis. When I went off it I broke out in hives.
Reply posted for taleiasmommy09.
I am sorry about your daughter's diagnosis. My son is a bit older (15) but was also diagnosed with Crohn's last month. He was diagnosed after 2 months of diarrhea and weight loss. It is so scary. One minute I worry about the potential complications if his Crohn's progresses, the next month I worry about the potential side effects of the medication. He has been on Prednisone and is feeling great and gaining weight, but today he started his first treatment with Humira. He gave himself all 4 of the starter injections, so it was a proud mom moment... even if it was for an awful reason.
Sending healthy and happy wishes to you and your daughter.
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