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I have been newly diognosed but still have been sick a few months after


Thu, May 23, 2019 6:50 PM

I have just been newly diognosed, I have chrones desies. I was trying some foods out but today i had stomac pain and i felt nausia i wasnt shure what to do. I told my dad.

We went to get some lab work done and we are starting me back on drinking pediasure peptide. This is how i got into remmision. 

If you have any questions please leave a commet below and i have been struginling and would like to make friends. 

Thanks! Evvy1010

FPO evvy1010
Joined Aug 24, 2019

Mon, January 27, 2020 12:25 PM

Reply posted for evvy1010.

aorry to hear that

FPO codyroseman
Joined Jan 27, 2020

Fri, January 24, 2020 12:53 PM

Reply posted for Windybear.

Thanks you to 

FPO evvy1010
Joined Aug 24, 2019

Fri, January 24, 2020 12:51 PM

Reply posted for tessatiraney.

Thats good seems like you are handling it well. You feel better?

FPO evvy1010
Joined Aug 24, 2019

Tue, January 07, 2020 9:30 PM

Reply posted for keithjohnson305.

The Humira seems to be working but have only been on it a month. Just December. But they also have me on prednisone... only for another 2 weeks they had to put me on it after my recent hospital visit before I got my injections sent to my house for the Humira. I will keep you updated on how they injections are but I hear good things.

FPO tessatiraney
Joined Jan 3, 2020

Tue, January 07, 2020 4:52 PM

Reply posted for tessatiraney.

I WAS DIAGNOSED WITH CHRON'S DECEASED 2YRS AGO BEEN GOING BACK AND FORTH WITH PILLS  BUT NOTHING SEEMS TO HELP. ARE THE INJECTIONS WORKING FOR YOU?

FPO keithjohnson305
Joined Jan 7, 2020

Sat, January 04, 2020 2:07 AM

Reply posted for Jonah.

What is Remicade? I was diagnosed with Crohn's disease and acute ulcerative colitis in October after 3 years of flares that they kept misdiagnosing and back then my first ct.scan showed it was inflamed and attacking the left side of my colon and now after all the flares iv had over the years my entire colon is screwed and small intestine and they just skipped over me trying pills and went straight to taking injections (Humira)

FPO tessatiraney
Joined Jan 3, 2020

Sat, January 04, 2020 2:07 AM

Reply posted for Jonah.

What is Remicade? I was diagnosed with Crohn's disease and acute ulcerative colitis in October after 3 years of flares that they kept misdiagnosing and back then my first ct.scan showed it was inflamed and attacking the left side of my colon and now after all the flares iv had over the years my entire colon is screwed and small intestine and they just skipped over me trying pills and went straight to taking injections (Humira)

FPO tessatiraney
Joined Jan 3, 2020

Fri, January 03, 2020 2:26 PM

Reply posted for evvy1010.

I was just  diagnosed with Crohn's in early December.  The BRAT diet helped for about 10 days.  GI MD put me on Prednisone first which helped a whole lot.  Now shifting to Budesonide.  This came out of the blue.  Totally a surprise.  Only found out because of results from routine colonoscopy.  Freaked me out for a while.  But I'm learning how to experiment and find foods that agree with me.  Fortunately I like my GI MD who is compassionate and responsisve to my questions.  I had a R&Y gastric bypass 3 years ago and am wondering if that might have been a contributing factor for getting the Crohn's.  Could use some buddies to help me cope with all this.  Happy New Year and Happy New Decade to us all.  

FPO Windybear
Joined Dec 28, 2019

Sun, November 10, 2019 1:38 AM

Reply posted for Djoni Marks.

I really considered Cannabis to help put me to sleep and not feel the pains at night. I asked my primary care about it and she told me that although it's not backed by the medical community, it is worth trying since it is an all natural plant.

FPO Konichiwa
Joined Nov 9, 2019

Sat, November 09, 2019 11:15 AM

Reply posted for evvy1010.

I was diagnosed in sept. And still suffering.  Have stomach pain and nausea and now wonder if I have I have the flu on top of the colitis. Due for colonoscopy on the 19th. Dr. Has never asked for a stool sample. Doesn't that seem weird. 

FPO YogaCrone
Joined Nov 9, 2019

Sun, November 03, 2019 9:58 AM

Reply posted for evvy1010.

Try cannabis! Jst try it!

FPO Djoni Marks
Joined Nov 3, 2019

Sat, October 05, 2019 11:13 AM

Reply posted for Jonah.

Aww thx i would enjoy being your friend

FPO evvy1010
Joined Aug 24, 2019

Sat, October 05, 2019 11:12 AM

Reply posted for Kjwf.

if you know how your body can handle pills then i would say maybe, but i would consider changing your diet until you think that you have got it fiquered out

FPO evvy1010
Joined Aug 24, 2019

Sat, September 21, 2019 2:52 AM

Reply posted for evvy1010.

Hi. I have been newly diagnosed wirh ulcerative colitis and due to collect my medication today called mesalazine and mezavant granules.

im very confused whether to take the medication or not. Should I try changing my diet first?

To be honest I’m very fit , gym every day , only gave up amateur boxing 11 months ago. I’m gutted and very confused.

my partner seems to think I am putting the pain on and the fact that I can’t control bowel movements which only adds to the stress.

Any assistance would be much appreciated 

FPO Kjwf
Joined Sep 21, 2019

Tue, September 03, 2019 5:50 PM

Reply posted for evvy1010.

You are not alone Jonah

FPO Djp406
Joined Sep 3, 2019

Fri, August 23, 2019 4:14 AM

Reply posted for evvy1010.

I was diagnosed back in July, my first doctor really didn’t know what he was doing. Funny story, as he took me to the colonoscopy he was laughing and singing! This freaked me out. Right now I just got my first remicade treatment. Looking for a friends to connect with too. It’s hard to be alone through something like this, but you have everyone here! 

FPO Jonah
Joined Aug 22, 2019

Fri, August 16, 2019 4:30 PM

Reply posted for Alfredoguzman.

i am sorry i couldnt get to yiu sooner but i would love to help you

FPO evvy1010
Joined Aug 24, 2019

Fri, August 16, 2019 4:25 PM

Reply posted for Alfredoguzman.

what are your questions

FPO evvy1010
Joined Aug 24, 2019

Fri, August 16, 2019 4:24 PM

Reply posted for Alfredoguzman.

what are your questions

FPO evvy1010
Joined Aug 24, 2019

Mon, July 29, 2019 9:56 PM

Reply posted for evvy1010.

Can you help me out ? Had a couple questions

FPO Alfredoguzman
Joined Jul 29, 2019

Sun, June 16, 2019 12:31 PM

Reply posted for cf.

Thanks ill consider it, i will avoid those foods i am allergic to milk wheat and corn

FPO evvy1010
Joined Aug 24, 2019

Sun, June 16, 2019 12:30 PM

Reply posted for lwcrohns.

Thanks ill consider it

FPO evvy1010
Joined Aug 24, 2019

Sun, June 16, 2019 12:30 PM

Reply posted for lwcrohns.

Thanks ill consider it

FPO evvy1010
Joined Aug 24, 2019

Sun, June 16, 2019 12:30 PM

Reply posted for lwcrohns.

Thanks ill consider it

FPO evvy1010
Joined Aug 24, 2019

Sun, June 16, 2019 12:30 PM

Reply posted for lwcrohns.

Thanks ill consider it

FPO evvy1010
Joined Aug 24, 2019

Sun, June 16, 2019 12:30 PM

Reply posted for lwcrohns.

Thanks ill consider it

FPO evvy1010
Joined Aug 24, 2019

Fri, June 14, 2019 10:23 AM

Reply posted for evvy1010.

Hi, I was diagnosed just about a year ago, and from May of last year when I started my meds to January I still wasn't 100%--the upset tummy was not as frequent, but I still did have pain and relatively frequent upset. Before trying to introduce new foods, make sure you are going a fews days with little to no symptoms, and then try the new food once and wait a few days. You may be expecting too much from the meds if you are trying new foods within the first few months. I also found that adding in a supplement of CBD oil twice a day helped my symptoms allievate. 

FPO lwcrohns
Joined Dec 17, 2018

Fri, June 07, 2019 3:12 PM

Reply posted for evvy1010.

I understand the battle. I was diagnosed with Ulcerative Colitis at 14yo and suffered for 10 years with GI doctors that never explained how to heal or improve. I became a naturopathic doctor and learned how to heal and stay in remission. I have been medicine free for 10 years and did not have surgery because of natural medicine. First intervention is diet: remove common food allergens corn, wheat, gluten, dairy, eggs, potatoes. Avoid carageenan in milks and foods. Avoid sugar! L-glutamine, probiotics, omega 3, Vitamin C and E can all help. Castor oil on tummy every night with heating pad can help restore structural integrity. Exercise 3x per week to keep things moving and improve immune system. Find a holistic, naturopathic doctor. They will teach you how to improve your health and stay in remission. Hope this helps :)

FPO cf
Joined Jun 7, 2019

Fri, May 31, 2019 8:34 PM

Reply posted for djwemlcc.

Thank you very much,the milk wheat and corn i think i should stay away from a year or two.If you had any more advice that would be very helpful.

Thanks,Evvy1010

FPO evvy1010
Joined Aug 24, 2019

Tue, May 28, 2019 3:55 PM

Reply posted for MAS.

I am sorry to hear that you have IBD but i love the tast of pedasure peptide chweing gum also makes me feel satisfied.

FPO evvy1010
Joined Aug 24, 2019

Fri, May 24, 2019 4:23 PM

Reply posted for MAS.

Thanks, I do actually drink pediasure peptide, thanlk you for your advise i  have seen about people with IBD and it doesnt seem happy thank you for your concern

FPO evvy1010
Joined Aug 24, 2019

Thu, May 23, 2019 10:24 PM

Reply posted for evvy1010.

Hi Evvy1010,

So sorry to hear about you being diagnosed with Chrohn's Disease.  Being diagnosed with any type of IBD is definitely life changing, and can be hard to accept at first.  

It's good you are working on keeping up your nutrition and strength, as well as staying hydrated.  Those are all VERY important in helping to keep you somewhat healthy, at least.  You may also want to try some type of protein shake with other vitamins and nutrients in it as well.  I myself, like the taste of the Atkins protein shakes, and those seem to be fairly easy on my stomach.  I am newly officially diagnosed with Ulcerative Colitis, which is another form of IBD, as you probably already know.  I'm not sure how much research you have done yet about IBD, but the more you know about them, the better it will be for you in the long run, especially.  I'm also still dealing with being pretty sick as well, so I know how upsetting and tiring it can be.

Good luck and take care.  Feel free to keep in touch with me too.  :)

FPO MAS
Joined May 18, 2019

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