Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

I'm so confused


Fri, September 20, 2019 9:29 PM

Hi there. I have been having pain in my lower right abdomen, next to my belly button. I ONLY feel the localized abdominal pain when I swallow food. It fades away shortly after the food hits my stomach. Super weird, right?! Its been consistent for 4 months now. Every time I eat. Not to mention diarrhea and constipation. I had a colonoscopy/endo in July which showed inflammation in stomach and doudenum. The doctor gave me famotidine and said I would be fine. Guess what? It didnt get better after months on the meds. I got a second opinion and immediately had a CT done. It showed small bowel enteritis consistent with Crohns disease. I was SHOCKED and scared. So we gor bloodwork done. CRP 3.3mg/l and 18 for my ESR, which is apparently good? No TB. Only bad thing was my vitamin d was extremely low. Heres the question: can you have stricturing in your small bowel and not have crohns? Why is my crp and esr in normal range when i have this pain? I dont have my second colonoscopy with biopsy until October. I'm dying to know whats going on!

FPO Schultz08
Joined Sep 20, 2019

Sat, November 30, 2019 7:37 PM

Reply posted for Schultz08.

Im same as you my blood test is normal only ESR is elevated 18, 23, 30, my pain is in small intestine but My Gi still think i dint have crohns, try MRi or Pill cam i did both, only pill cam show 3 ulcers in jejunum but doctor say forget about it. Im confused

FPO Abdulaziz
Joined Nov 30, 2019

Thu, November 21, 2019 12:45 AM

Reply posted for Jaime143.

You are spot on. They could not reach the stricture. I have to do a MRI and, if my stricture is open enough, I will have to do a pill cam.

FPO Schultz08
Joined Sep 20, 2019

Mon, September 30, 2019 9:52 PM

Reply posted for Jaime143.

Luckily it is in my terminal ileum. Doctor says its right next to my colon. Hopefully they'll see something that can help clear up this consistent pain.

FPO Schultz08
Joined Sep 20, 2019

Sun, September 29, 2019 3:19 PM

Reply posted for Schultz08.

I'm sorry to hear about your pain and frustration I totally understand. If you have Crohn's in your small bowel a colonoscopy will not see that so if I were you I would ask for a capsule endoscopy and they get more answers from that. Best of luck

FPO Jaime143
Joined Sep 29, 2019

Related Topics

I have been newly diognos...
Author Image evvy1010
Joined Aug 24, 2019

I have just been newly diognosed, I have chrones d....

read more

Parent of a child diagnos...
Author Image faucherh
Joined Aug 19, 2019

Hello! Just looking for community memebers that....

read more

Testing
Author Image joemurr92
Joined Aug 27, 2019

I have had several tests come back negative incudi....

read more