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Newly diagnosed and concerned


Sat, January 16, 2021 9:52 PM

Im 28 years old, a stepmother to four(16, 12, 10, & 7) I was diagnosed with Crohns after I went in to the doctor for blood coming from my rectum. I had a colonoscopy, they discovered that I have some ulcers and inflammation so they took a biopsy of my cecum and rectum, they also ran some tests with my blood. Im simultaneously relieved and not relieved to discover that my biopsy wasnt malignant. I am trying to wrap my head around what having Crohns means, and everything else that comes with that. The reason that I am and am not relieved that my biopsy wasnt malignant, is because my dad has Colorectal cancer, and he was diagnosed in his 40s. I dont have cancer now, but I just discovered that Im even more likely to have it now that I know that I have an IBD. Ive plunged myself into reading about Crohns and the complications that can arise. I am now stressing about how I can live my life in a way that I can do my best to make sure I dont have flare-ups, complications, etc. So as to avoid Colorectal cancer. Im already vegan, Ive been shopping mostly organic for two years because I dont want cancer and the chemicals that are in conventional foods are bound to give you cancer... My husband doesnt (I dont think) seem to understand the gravity of the situation, my diagnosis that is, unless I myself am overreacting. I dont know right now. Its only been three days since I was diagnosed, I am still bleeding a good amount, it took three days for a pharmacy to have the medicated enema I have to do for 30 days. Am I overreacting? Is this not as bad as it seems to me? I would appreciate it if someone could help me get a better grasp on my situation.

FPO AustinBehlke201
Joined Jan 16, 2021

Tue, August 03, 2021 3:03 PM

Reply posted for AustinBehlke201.

I completely understand your concerns as I had the same concerns about getting cancer when I was first diagnosed. I was diagnosed with UC at 22 had been having consecutive flares for over 5 years. I was told that if I do not get my flares under control the constant inflammation and stress on my colon could lead to cancer. Definitely a scary thought. However, there are options and there is hope.

The best approach to take is to work with your GI doctor to put your disease into remission. I have done this by taking medication. But this looks different for everyone. The goal though is to get the flare and inflammation under control, which I can tell you from experience is possible. I was very hesitant to take medications at first, but I realized how important it is to get the inflammation to stop to avoid any possible negative consequences in the future. I would definitely talk to your GI doctor about which options are best for you to try to get your disease into remission. Most importantly, reduce your stress in any way possible and don't lose heart!

FPO Allison
Joined Jul 24, 2021

Thu, January 21, 2021 12:30 PM

Reply posted for administrator.

Hi Austin, 
Thank for joining the community.
Crohn's Disease is a chronic long-term disease that can be managed with treatment and lifestyle changes.
 
Living with a chronic illness can be stressful and overwhelming. You can also look at your situation as being concerned and not overreacting.   You are on the right path because you are trying to learn all you can about Crohn's Disease.   You can learn more on the Foundation website at: https://www.crohnscolitisfoundation.org/what-is-crohns-disease.
 
We can provide you with information and resources to help you manage the physical and emotional symptoms of Crohn’s disease.   You can start by keeping a notebook of important information like tests, treatment, symptoms, and diet.  Also keep a list of questions to ask your doctor.
 
We understand your concerns about colon cancer, however....there are currently many successful treatments to manage your Crohn's Disease.   The "What If" about cancer will take away from your current task of learning about Crohn's Disease and living well.   Contact the IBD Help Center if you have questions or just want to talk...   info@crohnscolitisfoundation.org or 888-694-8872

FPO administrator
Joined Oct 12, 2017

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