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Ulcers in distal ileum but labs are negative


Thu, March 18, 2021 12:50 PM

Hello everyone,

My name is Vincent and I am new here. I'm a 27 year old male with a four year history of frequent diarrhea/loose stools, abdominal discomfort, and other related symptoms. I am an Ironman triathlete - very active and have what I believe to be a healthy diet. My symptoms have been progressively worsening over the past year or two and I finally got a colonoscopy. Doctor found some ulcers in the distal ileum and thought it looked like Crohn's. Got the biopsy results and there was no evidence of granulomas (long-term inflammation) but just lymphocytic infiltrates. Colon and rectum were normal. I also got a Prometheus biomarker blood test and the results were "not consistent with IBD". My doctor still thinks it is probably early-stage Crohn's and wants to start me Stelara. I'm a little unsure though, given the shaky diagnosis. Anyone have a similar experience or have any thoughts on this? 

Thanks so much,

Vincent

FPO vdimassa
Joined Mar 18, 2021

Fri, November 26, 2021 12:15 AM

Reply posted for vdimassa.

I really loved it here but are there any recent updates? Thanks  Click here

FPO looney
Joined Nov 25, 2021

Wed, October 13, 2021 4:12 PM

Reply posted for vdimassa.

Hi, 

I was diagnosed with UC after a colonoscopy in March. I also took the prometheus test, because my father has Crohn's and I wanted to make sure that I wasn't misdiagnosed. However, the prometheus test also said that my results weren't consistent with IBD. I'm sure you've already figured out a plan for yourself, as it has been about since months since this was posted, but my personal advice is to trust the colonoscopy more than the lab work. 

FPO kech5870
Joined Oct 13, 2021

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