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Just diagnosed when will meds kick in?


Tue, July 27, 2021 9:15 AM

Hi All!
I was just diagnosed with UC on friday :( been struggling with symptoms for months. Although I'm glad to know what was going on with me, I'm an emotional mess about the fact that my entire life has changed due to this chronic illness. I'm so desperate for the meds to kick in and see some kind of hope. I'm on day 4 of prednisone and so far nothing has change. Still lots of blood, urgent movements, etc. Can't sleep through the night and terrified to eat anything. Any advice? I'm waiting for a follow up with my GI so in the meantime I feel so lost and pretty lonely.. 

FPO rachh68
Joined Jul 27, 2021

Wed, August 04, 2021 12:22 PM

Reply posted for rachh68.

Hi! I am 21 and was diagnosed with UC in December of 2019. I began my treatment with mesalamine pills and enemas. This seemed a to help for a little but my symptoms got worse. I was on and off budesonide and prednisone until august 2020. After that, I thought my symptoms were under control. Boy was I wrong. I was admitted to the hospital a day after my 21st birthday in November of 2020. I was diagnosed with CMV on top of my UC flare. Every sense then, I have tried Humira and Entyvio and have been trying to come off of prednisone since but tend to have worse symptoms every time I get down to 5mg. In April, I had another terrible flare which landed me in the hospital again. I was 30lbs down from my original diagnosis and was pretty much losing hope. I switch GI doctors which was probably the best thing I hav ever done for myself. She put me on Remicade and every since then, my symptoms have improved a lot. I am gaining my weight back slowly and attempting to come off of prednisone still. I also find that Steroid foam or enemas helped me a lot like Uceris of Hydrocortisone enemas so you may want to ask your doctor about that. I'm not sure if these are as effective with chrons though. Either way, do jot lose hope and try to keep your stress levels down. Both of my terrible flares that landed me in the hospital are suspected to be caused by stress. I find that yoga helps with mine. Prednisone is a tricky drug and one that should not be a permanent fix due to the side effects but it has definitely saved my life, literally. If you want it to start to work faster, you may ask your GI doctor to inject the prednisone by IV. Sometimes out GI tracks cannot process medicine correctly so it id better to get it by blood stream. Anyway, I wish you the best of luck with your disease and I hope you go into remission soon!! I know I hope the same for me as well. Good luck! 

FPO juliaw
Joined Jul 26, 2021

Wed, August 04, 2021 12:21 PM

Reply posted for rachh68.

Hi! I am 21 and was diagnosed with UC in December of 2019. I began my treatment with mesalamine pills and enemas. This seemed a to help for a little but my symptoms got worse. I was on and off budesonide and prednisone until august 2020. After that, I thought my symptoms were under control. Boy was I wrong. I was admitted to the hospital a day after my 21st birthday in November of 2020. I was diagnosed with CMV on top of my UC flare. Every sense then, I have tried Humira and Entyvio and have been trying to come off of prednisone since but tend to have worse symptoms every time I get down to 5mg. In April, I had another terrible flare which landed me in the hospital again. I was 30lbs down from my original diagnosis and was pretty much losing hope. I switch GI doctors which was probably the best thing I hav ever done for myself. She put me on Remicade and every since then, my symptoms have improved a lot. I am gaining my weight back slowly and attempting to come off of prednisone still. I also find that Steroid foam or enemas helped me a lot like Uceris of Hydrocortisone enemas so you may want to ask your doctor about that. I'm not sure if these are as effective with chrons though. Either way, do jot lose hope and try to keep your stress levels down. Both of my terrible flares that landed me in the hospital are suspected to be caused by stress. I find that yoga helps with mine. Prednisone is a tricky drug and one that should not be a permanent fix due to the side effects but it has definitely saved my life, literally. If you want it to start to work faster, you may ask your GI doctor to inject the prednisone by IV. Sometimes out GI tracks cannot process medicine correctly so it id better to get it by blood stream. Anyway, I wish you the best of luck with your disease and I hope you go into remission soon!! I know I hope the same for me as well. Good luck! 

FPO juliaw
Joined Jul 26, 2021

Sun, August 01, 2021 6:27 PM

Reply posted for rachh68.

I was diagnosed with UC over 5 years ago and still remember the phone call from the doctor’s office. While UC is a chronic illness, it can be managed. Unfortunately, this takes time and effort. You will have to make adjustments, but there is definitely hope!

I was also on Prednisone for a while and it does take some time to kick in (I am estimating, but maybe a week). In the meantime, find those foods that are easy on your digestion. For me, it is rice and soft eggs and/or scrambled eggs in broth with sesame seed oil. Definitely stay away from anything that would rip up your intestines, like salad, raw vegetables, steak, etc. Drinking warm herbal ginger tea always helps me, too.

If you need any other suggestions, please do not hestaite to ask. We are here for you!

FPO Allison
Joined Jul 24, 2021

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