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Enteropathic Arthritis

Sun, September 05, 2021 3:44 PM


I am 46 years old and was diagnosed with UC when I was 14. I was tentatively diagnosed with Chron's in 2018 as I had a CT scan that confirmed two significant strictures in my small bowel, but subsequent colonoscopy, the GI doc didn't think I had Chron's. 

I have had joint pain since I was 15, but since the 2018 flare, I have had significant increase in finger, wrist, ankle, balls of my feet, costochondritis, and some sacroiliac pain. My hands are the absolute worst with my sometimes dropping objects, especially in the morning.

I am going to see a rheumatologist soon to determine whether or not I have enteropathic arthritis.

Do any of you suffer from this also?


FPO Dusman
Joined Sep 5, 2021

Thu, October 28, 2021 3:15 AM

Reply posted for Dusman.

I have a relative you is suffering from a Enteropathic Arthritis and it was so sad to see him in pain every time this condition is active.

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FPO francissolomon1
Joined Oct 28, 2021

Tue, October 19, 2021 2:02 PM

Reply posted for Dusman.

Yes, I was diagnosed this by a Rheumatologist about a year after my Crohn's diagnosis.  My arthritic symptoms showed up about a year after my Crohn's diagnosis (that went into remission about a month later).  So at the time of the arthritic symptoms, I was not having any Crohn's symptoms.  The arthritis was BAD, started in my feet/ankles/fingers, VERY swollen, painful and crippling.  My labs showed a lot of inflammation.  It also moved into my knees.  Make sure you let your rheumatologist know you have Crohn's, that was a big piece of the puzzle.  I was prescribed steroids for about a month and also started on Azathioprine for the long term.  For my Crohn's, I am on Mesalamine.   I am 42 years old and diagnosed with both these ailments in the past 2 1/2 years.  

FPO apd2work
Joined Mar 12, 2019

Tue, October 12, 2021 1:22 PM

Reply posted for Debkap.

Thank you for your reply and info. I saw the GI today and she was great. They are going to do a colonoscopy and ileoscopy as well as a CT endoscopy to study my small bowel. She has already tentatively diagnosed me with small bowel Chron's on the history and in office consultation alone. I have taken photos over the last few months of my hands and some of my toes/feet when they flare up and become swollen, painful, and even red. She did take that into consideration and commented that that definitely is a sign of systemic disease consistent with small bowel Chron's, especially with the significant increase in joint pain/swelling/inflammation that I am currently having. 

My joint symptoms are worse in my hands (knuckles & PIP joints) and in the balls of my feet (MTP joints) and toes. This is consistent with is what is known as "Type 2 enteropathic periperhal arthritis". With type 2, there are even two kinds of that: a. one that involves the big joints (knees, hips, elbows, etc.), and b. one that involves the small joints of the hands and feet. I do feel it elsewhere as noted above in my first post, but I definitely fall into the "Type 2b" category given my clinical presentation. Hopefully, in the next month or so, after we have the procedures, we can get on a path of healing with some type of medication intervention. I wish you the best!

FPO Dusman
Joined Sep 5, 2021

Tue, October 12, 2021 1:01 PM

Reply posted for Dusman.

I'm 53 now and experiencing much more joint pain than ever before.  I've been attributing it to "just another symptom of menopause" but I think it's more likely the Crohns.  Btw, I also was diagnosed with UC back at around age 19 (problems since around 16), sub-total colectomy at 30.  All of a sudden, my joints feel like I'm an old person! Pouchoscopy showed some inflammation last year so they decided it was Crohns and we tried Humira but I strangely had debilitating joint pain on it (not usual at all).   Going to the doctor next month and hope to try something new, since the joint pain is no longer debilitating but it has stuck around.

FPO Debkap
Joined Oct 12, 2021

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