My Crohns is severe enough that I am on disability. We have had to private pay my insurance for two years, and I'm approaching Medicare eligibility. (Never made sense to me that I could be identified as too ill to work yet not qualify for insurance.)
So here's the terrifying thing:
Humira is a Tier 5 medication and Pentasa is on only a few of the formularies. Which means that I will be accountable for copays that literally mount in the thousands.
We are a typical middle class family. We have assets and savings so I don't qualify for Medicaid or assistance programs. Don't get me wrong - I am very thankful for these gifts. But who, really, can afford the equivelent of three mortgages for medication?
I'm seriously thinking of stopping my medicine, or changing up treatment. But I'm also hopeful that there is someone out there who has walked this path and has some suggestions for me.
I am beginning to feel the weight of the diagnosis again. I went from working and productive to incapacitated. I had thought I had reclaimed myself, and was no longer just a disease. But these costs and the life changing impact of medication pricing is triggering those initial diagnosis feelings again.
My son was diagnosed with crohns at 10yrs old, due....
read more
Hi there. Wondering if anyone has noticed somethin....
read more
Can anybody comment on how their medigap plan cove....
read more