Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Sporadic Entocort causing anxiety?


Sat, April 13, 2019 10:49 AM

Hi Everyone.
I used to rely heavily on Entocort to keep my symptoms under control but at my doctor's urging, I weaned off and am using 6MP instead, which thankfully seems to be working.  However, he told me I could still take ONE 3 mg. Entocort a WEEK as a little insurance policy that things will remain good.

Yesterday I took my once a week Entocort and the anxiety and hyperness and flushed face were awful for the next 12 hours.   I have always had issues with anxiety and am also sensitive to meds, so I wonder if maybe I can no longer tolerate this "on and off" of the Entocort?    When I was taking it daily I imagine my body adjusted to it, but now that I take it once a week, does it make sense that it would create such anxiety, hyperness, tingling, sleeplessness, etc.?    

I now need to decide if I should give up the once a week and risk my colitis symptoms flaring, or if I should just deal with the side effects of taking Entocort once a week.   Anyone else this sensitive to a cortico-steroid?
Sue

FPO SueAndHerZoo
Joined Apr 13, 2019

Related Topics

Biologics and scarring
Author Image chelsea95
Joined Sep 26, 2020

Hi there. Wondering if anyone has noticed somethin....

read more

insurance coverage
Author Image jan11
Joined Jan 16, 2022

Can anybody comment on how their medigap plan cove....

read more

Starting Remicade Infusio...
Author Image shannonmiller
Joined Feb 20, 2023

I have Ulcerative colitis, am experiencing a bad f....

read more