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Remicade side effects ?


Wed, November 06, 2019 11:33 AM

I was diagnosed with Crohn's almost 2 years ago, and been on Remicade since. It was working well at reducing inflammation a great deal and healed a couple fistulas, but fter a year there were still some small pockets of active Crohn’s and 1 fistula that was not healed yet.

The doctor doubled my dosage from 
5 mg/kg to 10 (every 8 weeks). I’ve had 3 infusions at the higher dose so far and have noticed improvement. However, I've also had some joint pain: knee and hand after 1st one, nothing that I recall after 2nd, and now after 3rd one last Friday, I’m on day 5 of various pains. The First couple of days was a knuckle/finger swelling and pain, I could not move it or straighten it for a day and was a little better on day 2 but still signifiganly limited. Then a couple days of minor knee pain started on 3rd day. Last night as I slept I awoke a few times with pain in my collar bone hurts, hurts to lift arms a certain way or carry anything, and I ache in hips and one shoulder.

Anyone else experience this and if so, what helps? I took Tylenol but so far it’s not helping.


FPO hez1857
Joined Mar 14, 2018

Sat, November 09, 2019 10:33 PM

Reply posted for hez1857.

I've been on Remicade since April of this year and I haven't experience any of the side effects you've mentioned. I was on 5mg/kg every 8 weeks, now every 4 weeks. The medication seems to be loosing its potency on me and I will soon be either placed on another immuno surpressant, or may have to resort to surgically remove the section of intestine that keeps causing the obstruction.

FPO Konichiwa
Joined Nov 9, 2019

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