I started Entyvio this summer and am doing fine on it, no symptoms. But recently I started having some back pain and terrible knee pain daily. Anyone have any suggestions? I dont want to take another medicine for the side effects of another medicne...Much appreciated!
Reply posted for AE.
Hello -- I'm sorry to hear about your ordeal. Every treatment seems to come with its own unique set of issues. My son was on Remicade for 6 yrs with very few side effects and had a normal quality of life. He switched to Entyvio 1.5 yrs ago and has experienced significant joint pain, hair loss, and frequent sinus colds. He was in clinical remission on Remicade for 3 yrs with inflammation levels very close to zero. His inflammation levels have slowly and steadily risen since being on Entyvio. Needless to say, his quality of life has tanked. Whether the joint pain is due to rising inflammation levels (extra-intestinal manifestation) or a side effect of Entyvio is hard to say. Joint pain is a side effect of Entyvio, so is hair loss and sinus infections. Sounds like you might be in for some treatment roulette. Best of luck.
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