Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Entyvio


Wed, November 18, 2020 4:57 PM

I started Entyvio this summer and am doing fine on it, no symptoms. But recently I started having some back pain and terrible knee pain daily. Anyone have any suggestions? I dont want to take another medicine for the side effects of another medicne...Much appreciated!

FPO AE
Joined Nov 18, 2020

Sun, December 13, 2020 12:46 AM

Reply posted for AE.

Hello -- I'm sorry to hear about your ordeal.  Every treatment seems to come with its own unique set of issues.  My son was on Remicade for 6 yrs with very few side effects and had a normal quality of life.  He switched to Entyvio 1.5 yrs ago and has experienced significant joint pain, hair loss, and frequent sinus colds.  He was in clinical remission on Remicade for 3 yrs with inflammation levels very close to zero.  His inflammation levels have slowly and steadily risen since being on Entyvio.  Needless to say, his quality of life has tanked. Whether the joint pain is  due to rising inflammation levels (extra-intestinal manifestation) or a side effect of Entyvio is hard to say.  Joint pain is a side effect of Entyvio, so is hair loss and sinus infections. Sounds like you might be in for some treatment roulette.  Best of luck.

FPO Isa
Joined Jan 9, 2020

Related Topics

Treatment options decisio...
Author Image Bmineard1
Joined Nov 6, 2020

My son was diagnosed with crohns at 10yrs old, due....

read more

Biologics and scarring
Author Image chelsea95
Joined Sep 26, 2020

Hi there. Wondering if anyone has noticed somethin....

read more

insurance coverage
Author Image jan11
Joined Jan 16, 2022

Can anybody comment on how their medigap plan cove....

read more