Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Anyone looked into underlying immune deficiencies?

Mon, January 18, 2021 7:45 PM

Hi everyone,

I've been diagnosed with UC for nearly 10 years now (dx recently changed to Crohn's). Treatment has not worked well despite trying many of the gold standards. I recently had an infection that required an ileostomy, and the surgeon is looking to do a proctocolectomy. I started looking into the immune aspect of my issues, looking for some answer to explain all of this. I was recently diagnosed with Idiopathic CD4 Lymphocytopenia, with CD3 results looking strange as well. Basically I have several aspects of my immune system that appear suppressed for no well explained reason. I'm currently looking for specialists who will take my case on and take a deeper dive into this with me.

Has anyone else here been diagnosed with any immune deficiencies along with their IBD?

FPO tgp1994
Joined Sep 25, 2017

Related Topics

Corona Virus and Remicade...
Author Image Jennie RC
Joined Mar 21, 2020

Hi all, I'm facing the decision to get my Rem....

read more

Treatment options decisio...
Author Image Bmineard1
Joined Nov 6, 2020

My son was diagnosed with crohns at 10yrs old, due....

read more

New treatment Entyvio?
Author Image samilouw
Joined Nov 12, 2020

Hello, I am new here and recently went to see my G....

read more