Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

New to Stelara


Sun, February 14, 2021 3:59 PM

Hello All, Glad to have found this forum for questions and support. FYI, I'm 64 and have had Crohn's since age 16. I've been on pretty much every drug at some point or another. I've just had my first dose of Stelara Jan 19. It does seem to be helping with my chronic diarrhea, which is great news. In just the last few days I'm noticing shortness of breath and extreme fatigue. Has anyone experienced these side effects? I've been home on medical leave since early December, returning to work tomorrow, of course!

FPO ComeonEileen
Joined Feb 14, 2021

Mon, May 03, 2021 4:11 PM

Reply posted for ComeonEileen.

Hi...hope your doing Ok on Stelara.  Like you I'm new to it too.  I've had Crohns / Colitis for 50 years without surgeries and have gone thru Remicade, Humira and Entyvio.  After my loading dose infusion I felt better but was more fatigued.  I have since had my first shot.  Some of my symptoms are creeping back slowly.  I'm not sure that I will have immediate relief.  I'll soon have labs  to measure drug level and antibody response.  So...time will tell.  Just hang in there.  Good things come to those who wait....or so they say!

FPO mbeatty71
Joined Oct 14, 2015

Related Topics

Corona Virus and Remicade...
Author Image Jennie RC
Joined Mar 21, 2020

Hi all, I'm facing the decision to get my Rem....

read more

Treatment options decisio...
Author Image Bmineard1
Joined Nov 6, 2020

My son was diagnosed with crohns at 10yrs old, due....

read more

New treatment Entyvio?
Author Image samilouw
Joined Nov 12, 2020

Hello, I am new here and recently went to see my G....

read more