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Covid vaccine and flare

Mon, March 01, 2021 12:38 AM

I have had UC/Crohns for a dozen plus years. I am 60 years old and work in a hospital lab. I was able to get the Moderna vaccine on Jan 25th while feeling pretty good, no active issues but always fighting to stay flare free. I take Lialda and supps that I have found work, Vit C, D, Iron, Zinc, Oregano Oil, Beta Glucan and nightly double dose of Metamucil alongwith a bland restricted diet. Off Pred for 18 months, a new record for me in last 10 years. My disease laughed at Remicade and Humira, even with Metho-whatever and double dosing. Anyway, within 1 week after receiving the 1st shot I started feeling odd. Those of us that have lived with these diseases know the feelings. I immediately called my GI Dr, but he didnt think it was vaccine related. Over the next 2 weeks I progressively got more ill and more often BM's, started see heavy mucous and some blood in stools and my rear was sore along with pain in my colon. (I had a resection back 6 years ago to remove 7 inches of bad colon). Soon I developed a fricking perianal abcsess, which I have had twice in the past but a MRI just a year ago showed the abscess and fistula had fully healed. New MRI shows abscess with fistula.. So now I am scheduled to see a surgeon for possible incision & drainage along with possible fistula surgery later. I was due for the 2nd shot and denied it. When I asked my Dr about my concerns and suspicions of getting the 2nd shot while actively flaring and with an abscess, his reply was..."the CDC recommends everyone get the 2nd shot". I wanted to smack him. I didnt ask what the CDC advises, I asked about my specific situation. So frustrating. I already suspect that the vaccine did something that started this quick downhill decline. Anyone else feel any vaccine might have caused issues? I also had a flare a few years ago after getting Hep A & B vaccines but was much more actively sick then so wasn't sure if related, but after this I am avoiding vaccines in the future

FPO Jinxed
Joined Feb 28, 2021

Fri, July 23, 2021 8:37 AM

Reply posted for Jinxed.

I've had Crohns/UC since 2006, was on fortnightly Humira shots which put me in remission for past 4 years with no symptoms at all. Had a bout of diarrhoea after first dose of AstraZeneca which lasted about 3 weeks but since second dose end of April I have been flaring up which is still ongoing. For the past 5 weeks I have been on weekly shots of Humira plus Pentasa but there is no sign of the symptoms slowing down. I definitely regret taking it at all and not sure what I can do now to get me out of the flare since my usual medication seems to no longer be working. I have no advice to give but wish you all good luck! (I live in the UK)

FPO BDrysdaleWood
Joined Jul 23, 2021

Sun, June 27, 2021 4:35 PM

Reply posted for Jinxed.

I have had the same experience as you. I was already having some symptoms of a flare before the shot while on Entyvio. After my second Pfizer shot I developed a perianal abscess that turned into a fistula. I have been to the hospital now twice with a bowel obstruction. Still having pain and not able to eat. This after being on a relatively controlled state for years. Now my Crohns seems to be uncontrollable. I don't know if it was the vaccine or not.  No one can tell me. But the fact is I feel worse now than I have in a long time. 

FPO Peraleju
Joined Jun 27, 2021

Wed, June 16, 2021 6:11 PM

Reply posted for Jinxed.

You are not alone with bad flare after taking covid vaccine. Please read the other thread in this forum. 
My UC was in remission for 4 years until I took the first shot of Pfizer. It got worse after the 2nd shot with full flare up and usual medication doesn't seem to help. My body was feeling cold all the time which is odd. It's been 6 weeks and counting that it's still not fully under control. I just informed my GI but as usual without clinical studies, they will not confirm it. 

FPO ktan3848
Joined Jun 10, 2021

Tue, March 09, 2021 12:40 AM

Reply posted for Jinxed.

Hi Jinxed,

That sounds awful and I can only imagine how frustrated you are after working so hard to stay flare free for so long.  Your story rang true to me in a similar way.  Over many years I found a way to keep my flares in check.  They occasionally happened, especially if I was stressed or cheated on my SCD diet too much.  I always was able to bring these occasional flares back into remission with lifestyle & diet changes however... until... I caught the covid virus a year ago.  The virus made me sick enough to wonder if I was going to survive it, but the the fact that it also initiated one of my worst flares was devastating.  It took me months to recover even  a little and I wouldn't be surprised to find that my colon now is re-damaged in ways I can't imagine.

If I didn't have this disease, I would take the vaccine, but since I have this disease, & after reading about your experience, it's just not worth it for me to take the vaccine.  I very much appreciate you sharing your experience. 

Sending you healing & strength,

FPO berklia
Joined Mar 8, 2021

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