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Curious how our bodies may react to the Covid vaccine? Will we flare?

Tue, March 09, 2021 12:30 AM

I definitely am.

I got the covid virus a year ago at the beginning of the pandemic.  I almost didn't survive. 
On top of that, after being in remission for ulcerative colitis for years, covid put me into one of my biggest flares.  We are at a much higher risk for covid & so I wondered if the vaccine could cause similar issues.

Let me know if anyone is scared as much as I am.  I still have not taken the vaccine yet because of my fears, however I found a research study at Stanford that allows me to learn more about how the vaccine will affect me & I recently signed up.  

How do you feel about the vaccine?  Have you taken it and had any concerning response related to your crohns or colitis?

FPO berklia
Joined Mar 8, 2021

Sun, September 05, 2021 2:23 PM

Reply posted for Melindaschott .

I have had UC since I was 14 (now 46) and I had the same reaction that you did, but only with the first injection of the Pfizer series. It wiped me out, and significantly increased my arthritic symptoms in my hands and feet. It did calm down after about 12 days, then I recieved my 2nd injection, was worn down for a day, and then had no problems after 9 hours of sleep. Now, I'm looking at a booster shot (I work in healthcare in direct patient care) in the next month. Thank you for reporting your experience!


FPO Dusman
Joined Sep 5, 2021

Tue, June 15, 2021 4:14 PM

Reply posted for berklia.

UC for 22 years, in remission on remicade for 14 years, no problem with the vaccine. Had the Pfizer shots. I would argue that getting the vaccine would be better than getting COVID.

FPO Kwpharmd
Joined Jun 15, 2021

Thu, June 10, 2021 2:31 PM

Reply posted for berklia.

My UC was in remission for 4 years. But two weeks after my first Pfizer shot, it flared up mildly but it got worse after the 2nd shot which I had mild fever for two days. After that I continue to feel cold all the time and my usual UC medication didn't seem to reduce the flare up. I'm taking other treatments to help reduce the flare up. I think the vaccine caused my immune system to be over active and I had never experience such long flare up in my past 20+ UC history. 

FPO ktan3848
Joined Jun 10, 2021

Wed, May 05, 2021 4:55 PM

Reply posted for berklia.

I received my Pfizer vaccines back in February. Since then, I have had dizziness, heart palpitations, low red blood cell counts, fatigue, dizziness, and a sense of feeling unwell. My doctors have run multiple tests and have come to the conclusion that the vaccine may have caused my Crohn's to flare up and sent my body into a heightened immune response state. I have not felt well since February.

FPO brooke423
Joined May 5, 2021

Sat, April 24, 2021 4:32 PM

Reply posted for berklia.

My son was barely in remission from UC (on Stelara and steroid enemas) and had his second Covid vaccine (Moderna) two days ago. This past week his doctor had also ordered him to begin tapering off the steroid enemas. As of today, his UC symptoms are all back, but now I'm wondering if the timing was just bad - tapering off enemas AND getting vaccine #2.

FPO Melle
Joined Apr 24, 2021

Fri, April 09, 2021 11:25 AM

Reply posted for Ltd.

I got my J&J vaccine on 4/1. That night and all of the next day, I felt like I had been hit by a truck. Chills, aches, fever, headache, nausea. They slowly got better. A week later, those symptoms are completely gone. A few days after the vaccine, I have had a horrible flare. I have colitis. Previous flares have been manageable, but this is as if I am not on any medication. I take budesonide 9mg.

The vaccines were not tested on people who take immunosuppressants, I.e. people with crohn's and colitis.

I have not come across much information as to what to expect from here on out  if anyone has any more information as to what to expect, I'd greatly appreciate hearing about it.  I'm hoping things will get better. 


FPO Melindaschott
Joined Apr 9, 2021

Mon, March 29, 2021 11:25 AM

Reply posted for berklia.

Received my first dose of the Moderna vaccine a week ago and I was happy to get it. That said, I did get very sore about 24hrs after receiving my shot. I have Crohn's disease and am on Inflectra infusions every six weeks. Just had a colonoscopy a week before the vaccine and the infusions are doing great for me. Diagnosis is mild Crohn's without complications, so after having managed a pretty bad flare the past few years I'm in a great place compared to 2017/18. Arthritic pain has always been a symptom of my Crohm's flaring and the Inflectra helps keep that at bay but when I got the vaccine all the arthritis pain and aches came on at once. And they were turned up to 11. It only lasted about 12 hrs but I'm still experiencing some lingering soreness. I wouldn't say that the vaccine in anyway triggered my Crohn's because there was nothing related to my gut, but it does appear to have caused my body to respond and the inflammatory reaction was just like the muscle aches of IBD. This is all manageable and much better than getting COVID. 

Joined Mar 29, 2021

Wed, March 17, 2021 5:54 PM

Reply posted for berklia.

I had my 2 Covid vaccines ( Pfizer) and have had no issues with my Crohn's.

FPO Teddybear71
Joined Nov 21, 2019

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