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newly diagnosed on entocort and pentasa

Mon, June 02, 2008 12:00 AM

Hi. I was just diagnosed with Crohns last week. I can't believe it because I had been diagnosed with UC when I was 19 and had my colon removed and a pull through. I had 8 operations because of fistulas, peritonitis, absesses, etc. I have never been perfect but have been pretty good for 15 years. I recently went back to work and now, one year later, I have been having severe pain, upset stomach, fatigue, aches and feeling like I can't get out of bed. A sigmoidoscopy resulted in the Crohns diagnosis. I started on Pentasa and Entocort but am not feeling much better and now I have headaches and nausea. I could use some friendly advice. Does anyone have these side effects from these drugs. It has only been 4 days since I started and am supposed to see my Gastro again the end of this week.

Thanks

susang
Joined Jun 2, 2008

Thu, June 19, 2008 1:30 PM

Reply posted for susang.

I was put on pentasa when I was first diagnosed 8 years ago. I stayed on it for about 5 years and found that it didn't help in the slightest. I am not sure why it didn't, but I thought it was an overpriced drug that did virtually nothing. I haven't been on remicade myself, but from what I have heard from other Crohns patients it seems to be the best (but also very expensive). Just letting you know my experience with it.

jlrz63
Joined Jun 19, 2008

Mon, June 16, 2008 12:30 PM

Reply posted for susang.

Hi there susang! I am currently taking Pentasa, and I took Entocort for about 6 months. I'm also on Remicade every six weeks. I responded well to this treatment. I hope you start feeling better soon.

alinsatx
Joined Jul 18, 2008

Mon, June 02, 2008 12:00 AM

Reply posted for susang.

I was diagnosed with Crohn's about 8 years ago and was put on Pentasa. It worked really well. Then due to a health insurance change at work and my new insurance not covering Pentasa, I had to go on Asacol. My condition worsened over the time and in the past 18 months or so I have been back on Pentasa and have taken Entocourt on and off. I know that the Entocourt doesn't work right off the bat, it takes a little time. But I have never had side effects with either of the drugs, so I am not sure if it is the drugs making you feel like that or the Crohn's. I am not on Remicade infusions every 8 weeks to help put me into remission and also the Pentasa.

myaandiansmommy
Joined May 12, 2008

Mon, June 02, 2008 12:00 AM

Reply posted for susang.

I've never taken Entocort but I've always had a good response to Pentasa. I am currently doing Remicade Infusions every 8 weeks and Pentasa is the only other medication I'm on. I take 1500mg a day. Morning Noon and Night. I can definitely tell if I don't take it I feel much more inflamed. I wish you luck and hope that it begins to work successfully for you!!!!!

taybkc88
Joined Jun 2, 2008

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newly diagnosed on entocort and pentasa

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