This forum is great but they really need to get a chat room so people can talk when they are on instead of checking back and seeing if anyone responds.
Just a thought... I'm lonely and frustrated right now cause the darn prednisone doesn't like to let me sleep and the benadryll hasn't kicked in yet! All my family is asleep... even when I do sleep I have stress dreams like everything I worry about is in my dream and I can't escape to anywhere... wakes me up like every 15 minutes on top of my UC waking me to go to the bathroom.
Reply posted for mommy2twinz.
Chat room! chat room! chat room! i just join this forum like 2 days ago and i definitely agree, we need a chatroom!
Reply posted for mommy2twinz.
After making some phonecalls, I was directed to call this number:
1-888-694-8872.
I was told that if the DEMAND were expressed by enough people, we just might get a chat room. :)
So... express away.
Also, you'll all find it pleasing to know that CCFA is working hard to reduce the trial-and-error method we all have experienced with medicines that may or may not work.
Beautiful.
Much love to all,
=Carla
Reply posted for geminisunset.
I totally agree. I wonder how one might go about getting that started...? I'll try via the "contact us" route. The main downside of a chat room for IBD is a potential addiction to the internet. But that's the 2nd best thing to a support group. Great idea.
Reply posted for mommy2twinz.
I read your other post about being pregnant and sick with UC. I am wondering what medications you took while pregnant. I hopefully will be pregnant soon and know I need to be on medication, I too haven't been in remission in a long time, not as long as you. Any advice for me would be wonderful. Thanks.
If it's easier you can email me at meg.dav@verizon.net
Reply posted for geminisunset.
Yup it's a side effect.. fun huu!
Benadryll works, but even when I take that if I wake up I'm up for good.
Reply posted for mommy2twinz.
A chat room would be cool. The forum is really nice, but a chat room would bring this great support system to the next level.
On a side note, is insomnia a side effect of prednisone? I have avoided looking at the side effect list for fear of getting them into my mind and thus manifesting them. But seriously, I have not slept through the night in weeks. Last night I didn't even have the urgency to go to the bathroom (yay!), but I was still waking up consistantly through the night and having the hardest time going back to sleep.
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