Community Forum

There is no welcome section; so I thought this was the closest section to it.

My name is Jodi and I have severe Crohns and UC; I was diagnosed in 1999. I'm 30 years old, married 7 years, 1 daughter 10 years old, I am a Sales and Marketing Director. We live in the "Great" Northwest.

Hobbies: Riding ATV's, riding my motorcycle, Highschool Fastpitch Umpire, Movies, Music, Camping, and Photography.

Meds I currently take Pentasa, Prednisone, and Tylenol 3 as needed for pain.

Meds I've taken and were not successful Remicade, Asacol, Imuran, Sulfasalazine, Immodium, Lomotil and Entocort. Pentasa is marginally close to this list as it's been doing absolutely nothing.

Feel free to introduce yourself would love to here all about you!

 Reply posted for arib123456.

Hi! 

Are you referring to AloeElite?  I saw that on google and checked it out.  I was just recently diagnosed (July 3rd is when I got the news), however, now I realize I have had several flare ups over the past few years.  I am trying to get as much information as possible about alternative treatments.  I also have a friend who buys an Aloe drink, she drinks it very morning and hasn't had any problems for over 2 years!

Being 56 years old and (Thank GOD) very healthy, menaing, I haven't had to take this much medication EVER! 

I am trying to gather as much info as possible so I can ask the right questions when I go back to the specialist.  I was also informed that most people who try alternative treatment don't always inform their specialists.  Seems to me, especially with this disease, that you would want all parties informed?  Even if my Dr. was against the alternative, I would want her to know so she could guide me apropriately.

 Reply posted for ontheedge.

i'm katie and i've had crohn's since i was 18 in 2004. i got married in 2006. i had to stop going to college and get my associate's instead of my bachelor's because i got too sick. i'm currently on humira and prednisone. i've been on asacol, pentasa, imuran, entocort, probiotics, antibiotics, remicaid, and the kitchen sink. i have yet to be in remission. i live in the northeast with my husband and our kitten. in my spare time i like reading and photography.

 Reply posted for Elissa.

hello--

My name is Andrea, and I have had U/C since 1985. I have suffered using Asacol, steriods, etc...every year I would have a major flare-up. One year ago, I met a woman with a cell renewal aloe product-not believing anything would work-I said "what do I have to lose" and I tried it. I have gone 1 year without a single flare-up!!! I am talking normail bowel movements--it is sad in a way to be so excited about something so private, but I am.  If you want to know more, I would be happy to share:

arib123456@gmail.com

This can be my chance to pay it forward.

 Reply posted for gellagirl.

Hi everyone,

My name is Candice and I am 25 years old. I was diagnosed with Crohn's on May 8, 2008. I have a family history of the disease. My mom, my grandmother and my great-aunt have it. I have two wonderful children, a boy who is 9 and a girl who is 5. I've been married to the most wonderful man for almost 6 years. I work full-time outside of the home. Faith and family are the two most important factors in my life.

 Reply posted for ontheedge.

Hi,

I just recently started looking around on this website to find some type of support.  I helps to hear what other people are going through and what has worked or not worked for them.

I am 42 and a married mom with 3 children.  I was diagnosed with Colitis in the fall of 2004.  It has gotten severly worse since then. I am currently on  Predisone,Asacol, Methotrexate injections, Folic acid and a water pill. I just found out that I am anemic also and as soon as I can get to the store I will be taking an iron pill too. I am being weaned from the steroids and will be off of them in about 3 weeks.  I am hoping the Metho will kick in by then.  I tried Purinethol a few years ago.  It worked great until the migranes started and then I had to get off of it.

Currently I only eat one meal a day (dinner when I can be around a bathroom) and drink about 3-4 Ensure a day to reduce  the urgent need for a bathroom during the day.

Mags1

 Reply posted for ontheedge.

Hi, everyone.

My name is Jenny and I have Crohn's.  I was diagnosed earlier this year.  I'm 35 years old and we'll be celebrating my 15 year anniversary this summer.  We don't have any kids.

I live in Canada!  There is no forum on the Canadian site, so I come here to share.  I work for the gov't at a desk job, but I have been on short-term disability since February.  I'll be going back to my hell-hole job in June.

Hobbies:  watching tv, socializing, reading, concerts, movies, spending time with family

Meds. I currently take:  Imuran, Sulfasalazine, Ompriazole.

 Reply posted for ontheedge.

hi jodi,

 Reply posted for ontheedge.

Hi, Jodi and welcome. My name is Elissa and I have had chrons since 98-99. I have struggled with it constantly pretty much since I was dignosed. I have tried all the medications there are. Predisone asacol remicade, imuran. None of those worked at all. Now I am taking Humira and it has done WONDERS!!! The only bad thing is is that you can not take it when you have an infection of any kind and because of the chrons weaking my immune system I am really prone to catching stuff. I have not had a flare for almost a year, since being on Humira. I still have major fatiguie though, but that's it. I am 23 and I love to go camping(love the outdoors) and I love taking road trips. We never plan where to just pack up and go. I look forward to chating with you more. Take care and God Bless