Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Previous Topic Next Topic

Lonely

Thu, November 26, 2009 5:04 PM

Finally joined after reading so many stories that are very similar to mine. I was diagnosed with UC in 2000. I have had more years of remission one lasting 4 years, the other 3years. My last flare up began Christmas last year and lasted until July. I thought it was over for a while, and to my dismay it came back with vengeance the first of November. I was just sitting here alone while my family is having Thanksgiving without me. My UC is keeping me home today. I just feel lonely and sad at the moment. Staying positive has been a challenge this year! I just want control over my body and I am not getting it.

missliss
Joined Nov 26, 2009

Sun, December 13, 2009 7:24 PM

Reply posted for missliss.

If you do not think the Asacol is not working, make some phone calls. No one is going to speak up for yourself - only you can. You don't have to live in this type of pain.

I am seeing a therapist to work through my CD, (we've exhausted all meds, nothing left for me to take), and I believe it is going to make a huge difference in my attitude. I wanted this (therapy) and I'm very fortunate to have EAP where I work to help.

Keep the faith!

aca11
Joined Mar 3, 2009

Wed, December 02, 2009 1:00 AM

Reply posted for missliss.

Hope things are stabilizing for you... sharing problems helps and sometimes even brings solutions; but it rough going through it -- keep us posted! Lynn

wannabeucfree
Joined May 20, 2023

Sat, November 28, 2009 8:46 PM

Reply posted for wannabeucfree.

Thank you for the well wishes. I am taking Asacol which I think makes everything worse, and Rowasa enemas. The last few days I have been in bed resting as much as possible. Today was a better day still YUCK but better.

missliss
Joined Nov 26, 2009

Sat, November 28, 2009 1:00 AM

Reply posted for missliss.

Good luck to you. It is so hard to know what the triggers are, and what will cause a flare-up. My recent flare is calming down, still have issues, but making progress. I hope yours will calm down soon-- are you taking medications? I am wondering if there is any same-ness about flares-- (being recently diagnosed, I realize that the past 5 years or so have been a progressively worsening flare-with plateaus!). So coming out of it has been also slow, with some missteps. Hang in there!

wannabeucfree
Joined May 20, 2023

Thu, November 26, 2009 7:34 PM

Reply posted for missliss.

I give you sooooo much credit for staying home!!!! I know you know this but you need to take care of yourself and I'm glad you are. Don't be too sad. I'm sorry you're lonely but you are obviously a very strong woman. I have UC and CD and it gets to me, too. I want to say no to more things and will get to that point some day, I hope. Have a great day/night, I don't know what time it is where you are and hopefully tomorrow will be better!

ngc

ngc249
Joined Dec 19, 2008

Welcome to the Crohn's & Colitis Community!

This website is associated with the Crohn's & Colitis Foundation.

Please read our Top 12 Rules before posting messages and sharing stories. Always be courteous and sensitive to others!

Intended audience. The Crohn's & Colitis Foundation Online Community is intended for patients and their caregivers, family and friends. The Community is not intended for industry representatives or advertisers and these individuals are not permitted to participate on the site.

Meet the Crohn's & Colitis Community! Browse our site to see what our community is talking about and find issues important to you.

Join in and share your stories. After you feel comfortable with our site, register to share your thoughts on a regular basis.

Stay secure. Remember that our site can be viewed by anyone on the Internet. With the exception of our registration and personal pages, search engines are available within this site. To guard your privacy, follow these simple rules: do not share your address, phone number, details about your family, or anything else you would feel uncomfortable with others reading. If you post your personal email, be aware that you may receive spam e-mail from spammers who gather addresses off of the web.

Read and react to posts with care. If you don’t agree or are offended by someone’s post, take a step back and think before you reply. Since we can’t talk in-person to each other, we must recognize that we may be misunderstanding stories or posts. Please be sensitive to others’ feelings and ask for clarification before acting out.

Search before starting new topics. To keep our message boards easy to use, please use the search bar to locate topics of interest before starting a new thread. If you start a new thread, please use obvious subject headings and words that will catch the attention of others. Topics will be archived after 21 days of inactivity. To view past topics and posts, click on archive topics within each of the forums.

Stick to our guidelines. To keep this site safe for everyone, please do not post: doctors' names, treatment facility names and treatment specifics, contact information for others without their consent, links to websites with uncertain content or advertisements, requests for fundraising, items for sale, requests for study, survey and/or questionnaire participation or provocative information.

Sharing photos. Please use good taste and appropriate images when adding photos to your profile or personal stories. Photos should be in .jpg format.

Not following the rules? Crohn's & Colitis Community moderators routinely scan the message boards and will delete tasteless posts. If you post inappropriate messages or pictures or use offensive language in a post on multiple occasions, you will be notified via email and your account will be inactivated.

Report foul play. Help the Crohn's & Colitis Community moderators by reporting anyone that posts inappropriate messages or pictures by clicking the 'Report Abuse' button under the message or emailing ccfacommunity@ccfa.org.

Questions or concerns? Please feel free to email us at ccfacommunity@ccfa.org with any questions or concerns. We want you to feel comfortable here.

Terms & Conditions. By posting your story, questions, concerns and other information on the Community, you grant the Crohn's & Colitis Foundation or its authorized agent permission to publish, reproduce, record and use your stories as Crohn's & Colitis Community or the authorized agent sees fit in any medium or forum in a manner which helps to further the Crohn's & Colitis Community mission. You agree to release and hold harmless Crohn's & Colitis Community from any and all liability by any third party that may arise from the release of information to any third party or by any third party and agree that all text and other content made by you, for you or the person for whom you are the parent/guardian, shall be the exclusive property of Crohn's & Colitis Community. The Crohn's & Colitis Community cannot verify every claim made by a third party contributor to our Community and is not responsible for the authenticity of information posted.

Thank you! The Crohn's & Colitis Community is successful because of members like you!

Thanks!
The Crohn's & Colitis Community Team

*Any postings on the Crohn's & Colitis Community site should not replace your physician's advice. Always check with your personal physician before taking any action regarding your health.

Community Forum

Lonely

Crohn's & Colitis Community Forum

Rules

Welcome to the Crohn's & Colitis Community!

You are leaving this site