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Passing UC onto Kids


Wed, May 20, 2009 12:00 AM

Okay ... I don't know where to post this so I am choosing to post in a few different areas.  I just turned 34 a few months ago and was diagnosed with UC December 2008.  I am a newlywed and neither of us have children.  I have done some research and it looks like there is less than 10% chance of me passing the disease onto any children I may have.  Who out there has the disease and do your children have the disease too?  Who out there have children with the disase and you do not have it?  I realize that if I already had children it would be different.  I just want to know what I am getting into since I don't have kids yet.  Any input would be helpful.  Thanks!!

FPO gms7593
Joined Apr 4, 2009

Sat, June 06, 2009 12:00 AM

 Reply posted for gms7593.

I have UC and my paternal grandfather had it as well.  I have another friend and he is the only one in his family that has UC.  I don't have any children yet.  I can't remember the exact percentages, but I think you are right on the 9-10% of passing it on to your kids and my GI doc said that it raises possibly to 36% (don't quote me on that number) if both parents have it.  It is interesting to see how many people have it run in their families.  I have always believed genes play a part, but then there are some instances where it doesn't.  Interesting...

FPO rax10
Joined Mar 15, 2009

Fri, June 05, 2009 12:00 AM

 Reply posted for gms7593.

Hi, Even though there is less than a 10% chance of your children developing UC or Crohn's in my family my Great-Grandmother had UC, my grandmother had Crohn's and my father has Crohn's.  I was just diagnosed with Crohn's this month.  I always knew I would get Crohn's because I have had the symptoms since I was little.  It could always be worse I tell myself.  I often wonder why the runs so strong in my family....

FPO crisp82
Joined Jun 2, 2009

Tue, June 02, 2009 10:32 PM

 Reply posted for gms7593.

Hi!  I have Ulcerative Colitis and neither of my parents, or any of my relatives actually, have UC.  My mother has lupus and that can be coorilated with the "inflammatory disease gene".  I think that might be how I got my UC.  Hope this helps!

FPO tallgrl30
Joined Mar 7, 2008

Mon, June 01, 2009 3:54 PM

 Reply posted for gms7593.

I was diagnosed in 2007 with Ulcerative Colitis.  I have 3 children ( 7, 3, 11 months ) and none have shown any symptoms.  Also, I have no history of Colitis in my family. 

FPO momofthree
Joined Nov 10, 2008

Tue, May 26, 2009 12:00 AM

 Reply posted for wiseman4.

You and I are sort of in the same boat with the adoption thing.  My biological father was adopted and he passed away in 1993 so I really don't have too much of a link to his family.  My mother knows some information but it is difficult because his last name was Smith (not common at all ...LOL!!!)  I think I found someone in a search but it is an ex-wife of a brother and she is remarried.  I don't know if she is still married.  I also don't know how I would start a conversation about who I am and what I am needing.  It is really tough not knowing your family background.  Thanks for all the information.

FPO gms7593
Joined Apr 4, 2009

Tue, May 26, 2009 12:00 AM

 Reply posted for gms7593.

I was diagnosed with Crohn's Disease about a year after my first son was born in 1989.  To make a long story short, I have had MANY surgeries and had a colostomy when my second child was born.  So yes, you CAN have children.  And NO, so far my kids don't have it.  They are 20 and 14.  I do have to say that I watch them like a hawk for any symptoms, but so far all is good.  I do worry about my grandchildren to come, but that is out of my control.  To make things a little more difficult, I am adopted and do not know my family lineage so I don't know if it runs in my family.  But you know, Crohn's or UC is not the worst disease you can get in a lifetime.  You have to think positive.  In my case, I figure I can't have colon cancer, uterin cancer, etc.  You have to always try to look on the bright side.  I'm not always there, trust me, but it is my goal.  Let me know if you have any questions and I can give you more detail.  Thanks!

FPO wiseman4
Joined May 26, 2009