Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Pentasa


Wed, February 27, 2019 7:16 PM

Anyone else struggle taking Pentasa?  I moved from Canada to Costa Rica. In Canada i was taking Asocol my Crohns was managed fine. I move to CR and they can’t get Asocol so I am now taking Pentasa pills. They are huge and very hard to swallow. But the worst part is since I started taking Pentasa I have gradually moved into crisis. Now I am very ill. My doc upped my Pentasa and gave me the sachet of white beads to take. Well let me tell you, those are not any easier to take and so far I am still I’ll. He prescribed this and a probiotic as well as peptonismol and a drug to stop the cramping and spasms. So far. Three days and I feel worse. Now I have 0 appetize and I feel nasous all the time oh and very cold. 

FPO Dschlieker
Joined Feb 27, 2019

Wed, March 06, 2019 9:27 AM

Reply posted for Dschlieker.

I was on Pentasa originally when I was diagnosed. It helped with my symptoms a bit, but caused intense nausea the first week (treated with Bonine and pepto bismol), fatigue the second week, and by the third and fourth weeks I had horrible migraines. I got switched to Lialda (same drug, much cheaper though!) and had no side effects at all from the drug. In combination with CBD oil capsules, my symptoms are under control.

FPO lwcrohns
Joined Dec 17, 2018

Related Topics

My UC journey and progres...
Author Image Bonbon
Joined Sep 27, 2023

Hello all! I’m new here, I’ve been dia....

read more

Diagnosed with Chron's, w...
Author Image COR3
Joined Dec 19, 2023

Had a colonoscopy last week and they found inflamm....

read more

Freedom from fistula
Author Image Julia529
Joined Mar 3, 2024

My healing journey started when I was diagnosed wi....

read more