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Entyvio infusions

Tue, January 21, 2025 10:37 AM

I can no longer take mesalamine for my ulcerative colitis because I have developed a hyper sensitive to it. My doctor wants me to go on Entyvio infusions. Does anyone have any experience with this drug? How did you feel when being treated with Entyvio? Did it put you in remission?

Bears
Joined Jan 21, 2025

Tue, July 22, 2025 9:06 AM

Reply posted for fussbudg3t.

How old are you? I am 76 and was just diagnosed about three months ago. Mescalsmine is not putting this into remission even though I am doing very much better, so I am starting Entyvio infusions Thursday and will then move to injections every few months. I am already less energetic than when I was 50 or to but wonder how much less energy you are talking about? A little,or a lot? I have a small who.esale business that keeps me quite busy every day- I wonder how much Imwill have to slow down.

LenaL
Joined Jul 22, 2025

Fri, April 18, 2025 2:54 PM

Reply posted for Bears.

I've been on Entyvio for over two years now. I was on Colazal (Balsalazide) for almost 19 years and then it stopped working.
Entyvio has been good so far and the only downside I can say is having a bit less energy, but I'm of the age now that is less energetic, so there is that.
My only concern at this point is the possibility of increased cost due to rising parmasutical prices and possibly tariffs. If there is s sudden spike in cost, Medicare and supplemental insurance may still leave a substantial bill, so I need to keep close watch on pricing and coverage going forward.
Otherwise, Entyvio has been very good and has put my UC in remission.
Hope this helps.

fussbudg3t
Joined Apr 18, 2025

Wed, January 22, 2025 9:22 AM

Reply posted for Bears.

Thank you for your post, and sharing with the community.

Experiences with IBD medication can really vary, but there can be similar experiences as you've shared. You may already have planned to discuss the next steps in your treatment with your physician. As you make adjustments to your treatment plan, some questions that can be helpful are:

If your physician recommends changing your treatment, here are some options to consider in discussion:

1. What will be our new plan to manage my disease with IBD treatments?
2. How long might this plan take to work?
3. How will we be able to monitor how well this treatment plan is working? How frequently will tests be done during this change?
4. Will my new treatment need to be combined with other treatments?

Some additional resources that you can review at your convenience are listed below:

Thank you!

administrator
Joined Oct 12, 2017

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