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Microscopic Colitis

Tue, December 19, 2017 9:18 AM

I was diagnosed in 2013 with MC. Have had flare ups over the years. On Nov 12 starting having diarrhea. Going several times a day with night being the worst. I start with Imodium and restricted diet. When this fails I go to doctor. When it got out of control after Thanksgiving he prescribed Prednisone. This did not stop it. I then went to GI doc. He has started me on Entocort. You know the drill with that one. 9 mg for four weeks. I am only in my fourth day and last night I had to do five times. Very watery. Bad! So here I am sleep deprived and canceling all social activities including wife's birthday dinner. Some of you have mentioned Prednisone as the go to med if the Entocort won't work. That worries me. What do I do if I have no options remaining? I had bronchitis in Oct and to take antibiotics. I think this triggered it? Any suggestions?

bob9423
Joined Dec 19, 2017

Thu, March 29, 2018 8:15 AM

Reply posted for bob9423.

I was diagnosed w/ MC 3 years ago. I did all the usual meds most try. Steroids etc... I am now on Welchol it's worked the best of all. I'm not saying I'm symptom free by any means. I still have bad days in the month. But it has provided me w/ more freedom. I can enjoy a dinner at a restaurant and not have to go immediately following my food consumption. I explain it as the medication buys me a few hours, before the inevitable.Mornings are still my worst time when the pills are no longer in my system.

EEW
Joined Mar 29, 2018

Wed, February 28, 2018 1:41 PM

Reply posted for bob9423.

Try tincture of opium. Opioids will bind you up. This is nonaddictive.

charbs
Joined Oct 31, 2016

Wed, February 28, 2018 11:51 AM

Reply posted for bob9423.

Give the Endocort more time. Took me about 3 weeks on it. I was diagnosed in 2008 with Microcytic Colitis also known as Collagenous Colitis. I was 6 weeks away from a scheduled trip to HawaII with 3 other couples. Trip of a lifetime. Talk about stressed! I had one small flare in Hawaii because of eating pineapples. Stay away from the following foods: anything acidic like Pineapple, oranges, lemon, coffee, tea, (even decaff) olives. Also avoid, alcohol (although I can tolerate an occasional glass of wine), fryed fatty foods especially salad dressings, tomatoes, (I eat 2 tablespoons of tomato sauce and am sick for a week!), and dairy products. A couple years after developing colitis I developed gluten intollerence. Wow! now I have to stay gluten and dairy free on top of everything else. Hang in there. Keep a food diary. It took me about 6 months to figure out the things that set me off and I am still learning. Good Luck to you!

nancyt
Joined Mar 26, 2010

Wed, January 10, 2018 3:13 PM

Reply posted for bob9423.

Ask him to do a culture of your large intestine. My flares have always responded well to Flagyl.

hare
Joined Mar 31, 2016

Tue, December 19, 2017 10:17 AM

Reply posted for bob9423.

Any change in your diet in early November? You start taking any supplements? When my flare started, I found that restricting my diet to low FODMAP foods helped. Also napped when I could because of the tough nights. Also went on prednisone at 40mg. That helped a bit. Maybe you weren't on a high enough dosage?

Anyway, best of luck. Stay positive 'cause the added stress ain't gonna help.

Jmr
Joined Jun 26, 2017

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