Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Sudden movements


Wed, June 27, 2018 8:20 PM

So, I was diagnosed with mild UC November 2016, and ever since that I have only gone downhill. Humira did nothing for me, and I’m trying to get approval for entyvio. Lately I get up like 5-6 times a night to go to the bathroom, and it’s getting ridiculous. I find that if I’m sleeping on one side, and quickly shift to the other I have to run to the bathroom. It’s like my colon is sleeping and if I shift over to the other side I just woke it up. Anyone else deal with this?

Just had my 3rd colonoscopy, and now it’s severe UC. If that helps anything

FPO Cbbiggs
Joined Jun 27, 2018

Tue, July 10, 2018 7:59 AM

Reply posted for Cbbiggs.

yes this was me for the better part of so far a 25yr long battle with U.C the only thing that I can attribute to helping stop this is infact changing my diet quiet strictly and being on remicade.
I'm not talking about a paleo or fodmap this that blah blah diet either. I mean literally starting from scratch and working out exactly what my trigger foods are for me personally. It is a painstakingly long process, but it is most definetly worth it in the long run. sometimes it's as simple as a refined sugar, garlic, onion, everyones favourite gluten or lactose. I can eat gluten products until the cows come home with no upset to my actual stomach but I get hella heartburn (that one took me until about a year ago to finally realise).
This is my advice you can take it as you will, but don't completely dismiss anything until you give it a go it may just give you your sleep back.

Good luck.

FPO cyn83
Joined Jul 10, 2018

Related Topics

Has anybody tried medicin...
Author Image Galen
Joined Jul 13, 2017

I have heard that marijuana may relieve some of th....

read more

Mucous
Author Image Scb9887
Joined Jun 2, 2018

Ok, so I know I should be talking to my doctor abo....

read more

CURE FOR COLITIS- free fr...
Author Image Rawfoodel
Joined Jul 16, 2018

HI Everyone, I was diagnosed with colitis just ....

read more