Hi guys, I’ve was diagnosed with crohns in 2013 which was undiagnosed since childhood.
In 2015 I had a spell of about 6 months in the hospital starting with a rupture and then a failed surgery. After the first week I was discharged but the IV antibiotics was hiding peritonitis which showed it’s self in the “fun”
state of septic shock or sepsis in my bed at home. After a peritonitis washout, blood transfusions, apx 2L of fluid on the lungs and a magnitude of more issues I stayed In hospital for a long time after that with so many surgeries I’ve lost count and so many bowel recections.
These days im on humira and 6mp and they’re I think working we’ll containing the crohns but I’m having issues managing pain and stress.
My GP pushes me to use pain medication to get through the days as I have a high stress career with a lot of travel and I can’t afford to be slow...
i also have a load of family stresses which come and go (mainly come...)
My question is; how does everyone manage life and moving on after things like this?
Im really not a fan of codene pain meds but they seem to do the job and the docs seem to want me to continue targin frequently and endone when needed.
Im pretty sure the pains are coinciding with stress and busyness but I’m not in the position to make these things go away.
What do you reccomend, do I continue the pain management plan of more meds or go and deal with it as it comes?
Ive been told to try talking to a psyc to find a better Managment plan but I’m a bit weary of simply more meds.
Most crohns strugglers with know it also also comes with the beauty of insomnia and I’m on endep for that and pain as the docs say but it simply doesn’t work.
The specialist is happy for me to use around 80m of endep at night but I’m not getting tired. When I get pains it’s usually at night and If I could find something which simply “knocks me out”, I would use a lot less pain meds.
Does anyone have any suggestions?
Reply posted for HunterPoynton.
Reply posted for nhelw1.
Crohn's disease is a tough disease now two ways about it. In medcine these days we try to avoid additctive drugs for chronic indications as most studies show that in the long run they don't work. Luckily, there are non addictiive medications that can help pain and stress that con be used. You might look at the CDC's website for a primier on the non narcotic management of chronic pain.
Reply posted for charbs.
Thanks for the Pointer. I’ve had stilknox in the past and it worked great so I’ll have to talk to the dr about it. I just get ultra worried about dependencies.
Im not sure if ambian and stilknox are the exact same but I believe here in Australia it’s the main Med for short term use.
Reply posted for nhelw1.
Ambien has been a lifesaver for me
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