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Dealing with flares

Tue, January 15, 2019 8:33 AM

Hello, so I have been diagnosed with UC since 2017. I currently am in the midst of having a flare. My symptoms went from where it was filling the toliet with blood to where now (3rd day of treatment) it's just showing on the tissue with blood and now I see the blood in the stool. I'm trying to figure out how am I sure if the symptoms are fading and the medicine (enemas) are working? I think the blood has decreased which is a big step. Just kind of panicking, thinking worse case situation, cancer. I'm just freaking out. Any advice or comments would help calm me down. Thanks! :)

FPO JerriahA
Joined Jan 15, 2019

Wed, August 04, 2021 3:17 AM

Reply posted for JerriahA.

I hope everyone is doing okay and doing everything they can.

FPO Almaza2123
Joined Aug 4, 2021

Tue, August 13, 2019 6:05 PM

Reply posted for Epicdreamer.

Can you give us a sample on what a low acid smoothie has in it?  I'm in the middle of a flare up and nothing seems to stop the diarrhea.


FPO jrcupstid
Joined Aug 6, 2019

Thu, August 08, 2019 6:26 PM

Reply posted for Beckie.

I’ve only had 1 bad flare with mine since I was diagnosed in 2018.  The only thing that helped was steroids. My advice is that you need to have your hemoglobin checked to make sure you’re not anemic.....that creates a whole new set of problems.  Ive become anemic and now taking 2 iron pills a day and was so bad I almost needed a blood transfusion.  Be careful!

FPO Beckie
Joined Jun 7, 2019

Tue, July 09, 2019 11:51 AM

Reply posted for JerriahA.

I am brand new to this forum, this is my first question.  I was diagnosed with UC in 2005 and have been in remision for the past 12 years with the help of Lialda.  I convinced myself that I was cured (!!!) so stopped taking Lialda 1 year ago and managed without any symptoms, was able to eat and drink anything I wanted and thought it had gone away.  I have had a flare up for the past month so have begun taking Lialda again but my symptoms are not going away.  I have only ever had fairly mild symptoms, some blood in my stool, mild cramping, some nausea and mainly in the morning.   I have read some of your comments and you're right, we tend to live with symptoms and not fear them after a while.  Should I go to the Dr or wait for the Lialda to kick in?  I can't imagine the Dr will do anything other than tell me to keep taking the Lialda! 

FPO helenareid
Joined Jul 9, 2019

Tue, June 04, 2019 5:34 AM

Reply posted for crisparkle.

I've heard that some <a href="" target="_blank">oils</a> can affect on flares as a calming treatment. A friend of mine is practising the complementary calming therapy and she says it has  sense.

FPO crisparkle
Joined Jun 4, 2019

Sat, May 25, 2019 8:54 AM

Reply posted for JerriahA.

I hope you will be fine soon. 

FPO realdrganja
Joined May 4, 2019

Wed, April 03, 2019 11:24 AM

Reply posted for JerriahA.

I never noticed blood in my stools, I had perpetual diarrhea and so didn’t see the blood, but because of other health issues had to have blood work and found out I was severely anemic.  I ended up having to have 23 pints of blood transfused. You might ask your Dr to have your blood checked.

FPO charbs
Joined Oct 31, 2016

Tue, February 12, 2019 7:10 AM

Reply posted for JerriahA.

I have alot of blood in my stools to.  I've was diagnosed 2016. 

FPO Nikki McCulley
Joined Feb 9, 2019

Mon, February 11, 2019 7:24 PM

Reply posted for JerriahA.

Personally, seeing less blood in the toilet has always been a bit of a relief. Another indicator that I like to look out for, believe it or not, is farting. If I can pass gas without fear of passing anything else, I know my symptoms are on the leave, even if it takes a long time for them to go away.

FPO KRiegel
Joined Feb 4, 2019

Thu, January 24, 2019 11:31 PM

Reply posted for lydclrk.

I should clarify. What I was trying to say was NEVER ignore a symptom. ALWAYS call your Dr if ANYTHING changes. While many of us bleed a lot or have had that symptom that doesn't mean yours is the same. If something is not getting better or getting worse, call your Dr. If you ever have questions or feel worried, call your Dr. It sounds like you had some improvement but if it still worries you GO TO YOUR DR. I'd love to tell you, oh don't worry, I've been bleeding for 6 years and I'm cancer free, you'll be fine... But that is not how it works. What works for me is different for you. If I was in your position, would I worry? I personally wouldn't because I've had it before, but I'm not you. Call your Dr. Never assume. I hate Western medicine but I've accepted the fact it's my only option and I found a Dr that doesn't care if I call all the time or have questions. Find a good Dr. Stress is your enemy, relax.

FPO lydclrk
Joined Jan 24, 2019

Thu, January 24, 2019 11:10 PM

Reply posted for JerriahA.

Sorry about your diagnosis Jeremiah. I went through the states where I was certain I had cancer or was going to bleed to death too. It doesn't mean it's normal, but for UC suffers ALWAYS call your Dr, even if you just called or saw them. I've been in a really long flare and although I'm now anemic, I've had a colonoscopy and two sigmoidoscopes and I don't have cancer or perforation. The danger with UC is that you get really good at being sick. Can you imagine if you went to the hospital for extreme pain or frightening symptoms EVERY time you had them? I'd just move in there at that point. The dangers of getting really good at coping with horrible symptoms is that you can get yourself in a dangerous situation without realizing how bad off you are. My mother was a lifelong UC sufferer and died of sepsis from a rupture. She had fevers, pain, bleeding and all of the signs of a rupture but those happen every day to some of us. It's really hard for a young person to survive sepsis and she was 80. Try even until you find what works. Every one of us is different so there's not one cure-all unfortunately. Good luck, I wish you wellness.

FPO lydclrk
Joined Jan 24, 2019

Thu, January 24, 2019 10:46 AM

Reply posted for JerriahA.

Reading your post it reminded me of my thoughts prior to when I was first diagnosed.  I was sure that it had to be colon cancer- I was loosing so much blood!  It was insane.  I actually stopped myself from going to the bathroom because I was scared to see more blood- which ended up making me vomit daily.  It was not a good period in my life.   I would say that if you are seeing a decrease in blood that is a very good sign.  

Its all about how you feel.  You know your body best.  However, on the flip side- stress will impact your disease.  If you stress about the possibilities of what could happen it will be more challenging for you to get over your flare.  You have to trust in your body, trust that the medication is helping, and trust in your GI.  

Whenever I have a flare I start removing things from my diet such as soda, caffenie, dairy, fried foods, etc.  I also make sure to get some exercise in.  Even when I am not in the mood to I make it a point to go out for walks.  Its very important to be outside as much as possible- vitamin D is so important for IBD patients.  I prefer to get as much of that from the sunlight as possible instead of from a supplement but unfortunately I have had to rely on a supplement before- especially because I live in a State that has a full on winter season.  

Support is everything.  I have learned so much from the IBD community- search for a support group in your area.  Or ask your GI.  I met so many people by just talking about my disease.  I ended up finding a colleague that has UC as well which is so fantastic to have someone that I see often that can relate to what I experience.  Even though my disease is far worse then hers, she gets it.  

Wishing you the best in your IBD journey!

Joined Jan 14, 2019

Wed, January 23, 2019 12:08 PM

Reply posted for JerriahA.

Jerriah, first off, did you call your doctor/nurse?

Second, are you drinking plenty of water? 

Third, are you eating a clear liquid diet?

The doctor or nurse should have given you a sheet with the symptoms for flare ups and what to do about them and when to call the doctor.

I always switch to a liquid diet during flare ups (I use chicken bone broth, lots of water and low acid and low fiber smoothies).

I suggest you also rest a lot more than usual. You don't have to sleep but lying down and resting gives your body time to recover.

Of course, you should follow your doctor's recommendations.

I hope you recovery quicky!

FPO Epicdreamer
Joined Jan 23, 2019

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