Hello, so I have been diagnosed with UC since 2017. I currently am in the midst of having a flare. My symptoms went from where it was filling the toliet with blood to where now (3rd day of treatment) it's just showing on the tissue with blood and now I see the blood in the stool. I'm trying to figure out how am I sure if the symptoms are fading and the medicine (enemas) are working? I think the blood has decreased which is a big step. Just kind of panicking, thinking worse case situation, cancer. I'm just freaking out. Any advice or comments would help calm me down. Thanks! :)

Reply posted for JerriahA.

happy for you!

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Reply posted for JerriahA.

Happy for you!

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Reply posted for jwood.

I agree and hope things are working out for the best.
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Reply posted for jwood.

I hope everything has gone well for you. 

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I like it when folks get together and share thoughts. Great site, continue the good work!

Reply posted for richardsjenkins.

Your doctor may suggest changing the dose, frequency or type of medication. If you have missed doses of your medications or have stopped your medications and are now experiencing symptoms, talk with your doctor before restarting or increasing your medications on your own. www.greenvillecrawlspace.com

Reply posted for lydclrk.

It's really hard for a young person to survive sepsis and she was 80 but still she was doing cactus gardens. Try even until you find what works. 

Reply posted for JerriahA.

 I actually stopped myself from going to the bathroom because of waste management dumpster rental and I was scared to see more blood- which ended up making me vomit daily. 

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it reduces your stamina in doing activities. Just ask for a professional help. 
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Reply posted for ronlynch07.

Can you imagine if you went to the hospital for extreme pain or frightening symptoms EVERY time you had them? I'd just move in there at that point. The dangers of getting really good at coping with horrible symptoms is that you can get yourself in a dangerous situation brick masonry without realizing how bad off you are.  

Reply posted for JerriahA.

 Its very important to be outside as much as possible- vitamin D is so important for IBD patients. - crawlspace waterproofing

Reply posted for Sandss.

Reply posted for Sandss.

Do not overthink and always think positively. Remember that laughter is the best medicine so find ways to be happy, spend time with your loved ones and think of happy thoughts. Negative vibes won't help you improve your health. 
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Reply posted for JerriahA.

If you stress about the possibilities of what could happen it will be more challenging for you to get over your flare at Des Moines Foundation Repair.  You have to trust in your body, trust that the medication is helping, and trust in your GI.  

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Reply posted for JerriahA.

Praying for you! Hope things will get better on your end.

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Reply posted for ronlynch07.

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Reply posted for JerriahA.

I'm so sorry to hear that.. I hope you get better soon! blog

Reply posted for JerriahA.

If I can pass gas without fear of passing anything else hvac cleaning, I know my symptoms are on the leave, even if it takes a long time for them to go away. 

Reply posted for JerriahA.

Rest. If it you feel it is getting worse consult your doctor, but generally give it some time before you notice some change.  
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Reply posted for JerriahA.

I always switch to a liquid diet during flare ups (I use chicken bone broth, lots of water and low acid and low fiber smoothies). 

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Reply posted for bessiewatts18.

Stay active to maintain your strength and prevent pain flare-ups. Walking, riding, and swimming are all good ways to maintain your heart healthily and be powerful. Make sure to schedule some downtime as well. You can check this for more info.

Reply posted for chavesarlene4.

Stay active to maintain your strength and prevent pain flare-ups. Walking, riding, and swimming are all good ways to maintain your heart healthily and be powerful. Make sure to schedule some downtime as well. You can check this for more info.

Reply posted for JerriahA.

I have allergy flares all the time specially during the cold season. find time to check Cleaners Kelowna

Reply posted for JerriahA.

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Reply posted for JerriahA.

I hope you're feeling better now! God bless you!

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Reply posted for JerriahA.

 If you stress about the possibilities of what could happen it will be more challenging for you to get over your flare.  You have to trust in your body, trust that the medication is helping, and trust in your GI.  

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Reply posted for Nikki McCulley.

Rest. Once a flare starts, many people will need to reduce their activity levels. https://www.bluecalla.com/

Reply posted for richardsromero.

I have had a flare up for the past month so have begun taking Lialda again but my symptoms are not going away.  I have only ever had fairly mild symptoms, some blood in my stool, mild cramping, some nausea and mainly in the morning.  

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Reply posted for JerriahA.

I'm not an expert and I have no idea about you concern but please go to your doctor for proper treatment. Always remember that health is wealth. Building Decks

Reply posted for Jake Xyrus.

If they become worse, you should see a doctor for medical care. This helps ensure that you have a lower risk of complications, such as a blood clot or strangulated hemorrhoids.
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Reply posted for pagefitzpatrick.

My advice is that you need to have your hemoglobin checked to make sure you’re not anemic.....that creates a whole new set of problems. 

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Reply posted for JerriahA.

I hope everyone is doing okay and doing everything they can.

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Reply posted for Epicdreamer.

Can you give us a sample on what a low acid smoothie has in it?  I'm in the middle of a flare up and nothing seems to stop the diarrhea.

thanks

Reply posted for Beckie.

I’ve only had 1 bad flare with mine since I was diagnosed in 2018.  The only thing that helped was steroids. My advice is that you need to have your hemoglobin checked to make sure you’re not anemic.....that creates a whole new set of problems.  Ive become anemic and now taking 2 iron pills a day and was so bad I almost needed a blood transfusion.  Be careful!

Reply posted for JerriahA.

I am brand new to this forum, this is my first question.  I was diagnosed with UC in 2005 and have been in remision for the past 12 years with the help of Lialda.  I convinced myself that I was cured (!!!) so stopped taking Lialda 1 year ago and managed without any symptoms, was able to eat and drink anything I wanted and thought it had gone away.  I have had a flare up for the past month so have begun taking Lialda again but my symptoms are not going away.  I have only ever had fairly mild symptoms, some blood in my stool, mild cramping, some nausea and mainly in the morning.   I have read some of your comments and you're right, we tend to live with symptoms and not fear them after a while.  Should I go to the Dr or wait for the Lialda to kick in?  I can't imagine the Dr will do anything other than tell me to keep taking the Lialda! 

Reply posted for crisparkle.

I've heard that some <a href="https://oilscenter.com/oils" target="_blank">oils</a> can affect on flares as a calming treatment. A friend of mine is practising the complementary calming therapy and she says it has  sense.

Reply posted for JerriahA.

I hope you will be fine soon. 

Reply posted for JerriahA.

I never noticed blood in my stools, I had perpetual diarrhea and so didn’t see the blood, but because of other health issues had to have blood work and found out I was severely anemic.  I ended up having to have 23 pints of blood transfused. You might ask your Dr to have your blood checked.

Reply posted for JerriahA.


I have alot of blood in my stools to.  I've was diagnosed 2016. 

Reply posted for JerriahA.

Personally, seeing less blood in the toilet has always been a bit of a relief. Another indicator that I like to look out for, believe it or not, is farting. If I can pass gas without fear of passing anything else, I know my symptoms are on the leave, even if it takes a long time for them to go away.

Reply posted for lydclrk.

I should clarify. What I was trying to say was NEVER ignore a symptom. ALWAYS call your Dr if ANYTHING changes. While many of us bleed a lot or have had that symptom that doesn't mean yours is the same. If something is not getting better or getting worse, call your Dr. If you ever have questions or feel worried, call your Dr. It sounds like you had some improvement but if it still worries you GO TO YOUR DR. I'd love to tell you, oh don't worry, I've been bleeding for 6 years and I'm cancer free, you'll be fine... But that is not how it works. What works for me is different for you. If I was in your position, would I worry? I personally wouldn't because I've had it before, but I'm not you. Call your Dr. Never assume. I hate Western medicine but I've accepted the fact it's my only option and I found a Dr that doesn't care if I call all the time or have questions. Find a good Dr. Stress is your enemy, relax.

Reply posted for JerriahA.

Sorry about your diagnosis Jeremiah. I went through the states where I was certain I had cancer or was going to bleed to death too. It doesn't mean it's normal, but for UC suffers ALWAYS call your Dr, even if you just called or saw them. I've been in a really long flare and although I'm now anemic, I've had a colonoscopy and two sigmoidoscopes and I don't have cancer or perforation. The danger with UC is that you get really good at being sick. Can you imagine if you went to the hospital for extreme pain or frightening symptoms EVERY time you had them? I'd just move in there at that point. The dangers of getting really good at coping with horrible symptoms is that you can get yourself in a dangerous situation without realizing how bad off you are. My mother was a lifelong UC sufferer and died of sepsis from a rupture. She had fevers, pain, bleeding and all of the signs of a rupture but those happen every day to some of us. It's really hard for a young person to survive sepsis and she was 80. Try even until you find what works. Every one of us is different so there's not one cure-all unfortunately. Good luck, I wish you wellness.

Reply posted for JerriahA.

Reading your post it reminded me of my thoughts prior to when I was first diagnosed.  I was sure that it had to be colon cancer- I was loosing so much blood!  It was insane.  I actually stopped myself from going to the bathroom because I was scared to see more blood- which ended up making me vomit daily.  It was not a good period in my life.   I would say that if you are seeing a decrease in blood that is a very good sign.  

Its all about how you feel.  You know your body best.  However, on the flip side- stress will impact your disease.  If you stress about the possibilities of what could happen it will be more challenging for you to get over your flare.  You have to trust in your body, trust that the medication is helping, and trust in your GI.  

Whenever I have a flare I start removing things from my diet such as soda, caffenie, dairy, fried foods, etc.  I also make sure to get some exercise in.  Even when I am not in the mood to I make it a point to go out for walks.  Its very important to be outside as much as possible- vitamin D is so important for IBD patients.  I prefer to get as much of that from the sunlight as possible instead of from a supplement but unfortunately I have had to rely on a supplement before- especially because I live in a State that has a full on winter season.  

Support is everything.  I have learned so much from the IBD community- search for a support group in your area.  Or ask your GI.  I met so many people by just talking about my disease.  I ended up finding a colleague that has UC as well which is so fantastic to have someone that I see often that can relate to what I experience.  Even though my disease is far worse then hers, she gets it.  

Wishing you the best in your IBD journey!

Reply posted for JerriahA.

Jerriah, first off, did you call your doctor/nurse?

Second, are you drinking plenty of water? 

Third, are you eating a clear liquid diet?

The doctor or nurse should have given you a sheet with the symptoms for flare ups and what to do about them and when to call the doctor.

I always switch to a liquid diet during flare ups (I use chicken bone broth, lots of water and low acid and low fiber smoothies).

I suggest you also rest a lot more than usual. You don't have to sleep but lying down and resting gives your body time to recover.

Of course, you should follow your doctor's recommendations.

I hope you recovery quicky!