Moderate-Severe UC here. Typical symptoms and BM frequency. Was hospitalized for 10 days after oral prednisone did not do much. Was on IV steroids there. While I was there, they also started me on Remicade. I have been on the Remicade for 11 days. Bleeding went down a bit while I was in hospital and they discharged me last Saturday the 7th. I have been at home taking oral prednisone after 10 days of IV steroid, however I have noticed the bleeding start to increase over the last 48 hours. Second Remicade infusion is scheduled 4 days from now (18th.) At what point would it be considered necessary for me to return to hospitalization, particularly with the rectal bleeding? Reading some scary things about complications and toxic megacolon. Currently at 6-8 BMs per day. Pain comes and goes. I do not want to return to hospital as it was a rather miserable experience, but also want to make sure I am not risking anything serious while resting at home - I suffer from anxiety which is not helping. Blood work detected mild anemia which they have me taking an Iron Supplement to help with.
Reply posted for HornPB.
Keep an eye on your blood numbers. I passed so much blood, without realizing it, that I was severely anemic. Iron infusions didn’t work. I moved up to blood transfusions and ended up getting three pints a month. Had twenty three pints in all.
Reply posted for HornPB.
Keep an eye on your blood numbers. I passed so much blood, without realizing it, that I was severely anemic. Iron infusions didn’t work. I moved up to blood transfusions and ended up getting three pints a month. Had twenty three pints in all.
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