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When I Should Go To The Hospital


Tue, October 01, 2019 5:07 PM

Hi my name is Allison and I'm 21 years old and was diagnosed with Crohns in 2017 (my freshman year of college). I had it originally in my stomach, took Humira for two years, then in May of 2019 I was scoped EDG and colonoscopy was clear. In August I started to get diarrhea and cramps and I would rate my pain 8/10 at the moment. But the pain only happens 1-3 hours after I eat, and I am in tears and hunched over. I have been on prednisone for over a week and Tramadol (opioid pain medication) for my severe pain. I have been dealing with this pain for over a month and it keeps getting worse. I'm fine if I don't eat, but I know I need to. But it's the same thing: I eat, then I cramp in severe pain, then I have diarrhea. 


I guess I just feel miserable, and I can't even go to class or spend time with my friends without crying out in pain. Any suggestions on how to manage my pain? I'm at a loss. 

 

FPO kobyalli
Joined Oct 1, 2019

Tue, January 21, 2020 9:35 PM

Reply posted for Twojton01.

Hi there,

Update: I decided to go to the ER. They did a CAT scan with contrast. Results were my intestines were swollen almost completely shut. I was admitted for a week and a half, they had me start IV steroids for 7 days, then once the inflammation went down I could take oral steroids. I wasn't absorbing my oral steroids due to me being so inflamed. I also was clear liquid diet for two days, then liquid diet for two days, then started slowly introducing foods. It was a very bad flare up, and if I would have known that is what it was I would have taken a step back on my diet and done a bland diet or low residue diet. 


I started Stelera in October and so far so good! I'm happy to say I'm feeling almost 100%. I gained weight being on a steroid so I've been watching my diet and trying to do some workouts. 


 

FPO kobyalli
Joined Oct 1, 2019

Tue, January 21, 2020 8:29 PM

Reply posted for kobyalli.

I would start by getting tests done. Theres to many factors of why it could be. From what I've learned is that something may work for some but other it may not. Each human body is different but sometimes similar treatments work. Our world of food is so bad with some many factors and polluted with chemicals our food isn't really food anymore in my opinion. It's tough to say whats even "organic". We can still try to really pick the best foods but its changed dramatically over the last two decades. I just went and paid out of pocket for a food sensitivity test to see what I am allergic to and what not for a start. Id also keep a log of what you eat and how each of it makes you feel. Believe or not sometimes when I think I eat really bad or it would be considered " Bad food" I've noticed less symptoms. But I think thats a start. Also I seen others suggest a GI specialist. Hope this sheds some light. :) 

FPO Dantethewolf47
Joined Jan 20, 2020

Tue, December 17, 2019 3:32 PM

Reply posted for kobyalli.

Hey there! 

I got diagnosed in May of this year (2019). When I started treatment I was experiencing similar problems along with pretty bad diarrhea. I would try to get an appointment ASAP with your GI. My guess is you are having a pretty bad flareup. He will probably need to put you on prednisone or entecort for a while to bring down inflammation. Have you tried bland diet? That tends to help during flareups. I recently went to hospital because I was experiencing nonstop 8-10 level pain and uncontrollable diarrhea. Turned out I was having such an extreme flareup that I had almost full blockage. I had to be admitted. 

If the disease is causing you not to eat/affecting your diet you should always seek medical attention (first try your GI and if they can't see you soon enough go to ER).

hope you feel better!

FPO Melsal
Joined Apr 30, 2019

Tue, December 10, 2019 10:37 PM

Reply posted for kobyalli.

Hi there.  I wanted to check in and see how you are feeling.  

my daughter is going through the exact same symptoms right now.  Did you get a diagnosis and did anything help?

FPO Twojton01
Joined Dec 10, 2019

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