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look healthy feel like death warmed over

Tue, September 29, 2020 6:37 PM

Hi all,
My name is Kim. New to forum. I have suffered diarrhea and abdominal pain since about 5th grade. I was always told I just had IBS. And basically just deal with it. Then in Dec. 2018 I had major back surgery and spent 3 weeks in the hospital. I have been in a flare ever since. And thankfully found a doctor to give me the diagnosis of UC now that I am in my 50's. I fill the bowl daily with blood and clots. I have been limited to only eat meat, milk, cottage cheese, yogurt and cheese. I still have several accidents in my pants each week with this diet. But at least it's not several each day like it has been for the past almost 2 years. I am on 4 Mesalamine, 2 Azothiprine, 1 Prednizone daily plus Humira injections every other week. I have no energy and feel worn out from doing one or two things in a day. Friends and family keep saying you look healthy. I'm so sick of being sick and trying to be a part of the world so I don't become isolated. I often skip eating altogether just to be able to join social events. But then the next day I am so exhausted I fall asleep throughout the day. It feels so good to read all your stories and know that I'm not the only one out there dealing with this awful disease. There is no way I could even work with the 20+ bathroom visits each day and the waking up all night long to take more visits to the bathroom. Is there any light at the end of the tunnel? Will I just continue adding more and more medications with high risks and still spend my life in pain? I have done so much research on this disease. It seems what works for one doesn't for another. Do any of you also have constant burping or belching?
Thanks, Kim

Kim
Joined Sep 29, 2020

Fri, May 07, 2021 2:43 PM

Reply posted for Kim.

Sharing your personal problems, such as health issues is a great way to make use of forums available across the Internet. A website that offers Funeral Stationery also had a similar forum to offer. I think such acts are really important for those who do it.

AdelaideBeck
Joined Apr 1, 2021

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