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Wish I could just give up

Tue, April 19, 2022 12:20 PM

I have had UC for over 40 years. Been thru a lot, resection, absesses, no biologic's work. Lialda helps a lot but lately bleeding. Prednisone at a low 5-10 MG will keep me feeling great, but my Dr will no longer rx except for a 2 week dose and taper. Im 62 and sometimes wish I could just give up, but its really not an option. I feel like a fighter that has been in a continuous million round fight. The fight never ends and nothing improves. Discouraging is to mild of an explanation. If I had no family, I would have probably offed myself by now. It downright hurts to live. Im at a loss. Other than family, I have no life. Making the best of it is getting harder as this continues. I dont tell family how bad I am doing because then they worry and dont want them feeling the effects of my UC. Just wanted to vent. Hope others here are doing well and prayers to you all.

FPO Jinxed
Joined Feb 28, 2021

Thu, February 23, 2023 9:18 PM

Reply posted for Colitis2022.

Hey, thanks for the reply. Sorry for the delay. How is your gut treating you? Hope all is well. I had a few months there, from end of Nov thru start of February that I was flair free, no bleeding, eating well, life was good. But, now, bleeding started back up. My GI insisted I get a colonoscopy. I told him it would through me into a flair, and it did. It also aggravated my fistula and now I have a small abscess with fistula, constantly draining and painful. Consulting with a CRS about just removing my colon and rectum and going the bag way. Except, a guy with UC in my CCFA group just had that done and now less than a year later, dx'd with CD. So after having his colon removed, he now is back on biologics for his small intestine inflammation. What a sucky disease this is. And yes, after this long uc, my diet is very limited and I know most of my trigger foods. I gave up dairy over 4 years ago.

FPO Jinxed
Joined Feb 28, 2021

Sat, September 10, 2022 3:19 PM

Reply posted for Jinxed.

I understand, I have had UC for 35 years. I'm 60. I am currently taking prednisone and Lilalda. Tapering prednisone. It's hard, and depressing but I'm feeling great on the prednisone. I don't like telling family either because I get tired about talking about my stupid colitis. Hang in there. `for me diet is a huge deal. I can no longer tolerate any red type hot sauce Mexican red sauces, Italian red sauces. Zero milk. Basically meat and potatoes. Good luck, your not alone.

FPO Colitis2022
Joined Aug 4, 2022

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