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Confused! Frustrated!

Sun, August 27, 2023 2:33 PM

I am 68 years old. I was diagnosed with Crohn's a year ago and had surgery in December 2022. Started Entyvio a month ago.

As I read stories from other patients with Crohn's who are suffering or have painful symptoms, I feel somewhat guilty to comment on my situation.

However, I have another condition that puts me in the Immunocompromised population and other issues that can be attributed to being a senior, plus I am just starting to live more normally after Covid.

I am frustrated. My symptoms have during the past two weeks become worse: increase in the numbers of bowel movements, gas (burping) that can last for an hour or more, fatigue. I never really have severe pain and feel guilty even complaining.

Started Entyvio and confused about when this extremely expensive medicine is going to help or will help!

Frustrated with food! Before I was diagnosed, I was already on a no-gluten diet. I had found during a Fodmap elimination diet 5 years ago that I was sensitive to gluten. A few months ago, 6 months after surgery, I tried gluten foods, and it seemed that I was not sensitive anymore. No new symptoms!

Because of increased symptoms during the past 2 weeks, I feel that I need to go back now to a non-gluten diet. Eating gluten-free and bland foods gets me frustrated. It is so boring! I also have a hard time preparing dinners for myself and finding a good and interesting selection of meals.

Comments and advice would be appreciated. Thanks!

pwstamps
Joined Aug 27, 2023

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