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working with uc


Thu, May 28, 2015 6:26 AM

I have been in a flare for over six months and it Is taking a toll on my job. I am tired, weak, and constantly losing bowel control. looking for suggestions to help me make it through until flare is finally over.

FPO apend1
Joined May 28, 2015

Mon, July 27, 2015 11:38 AM

 Reply posted for apend1.

I feel your pain...work is difficult when flaring...its an invisible disease so people just don't get it...get FMLA to protect your job. Driving hjete I'd difficult as its 45 mins and I don't always make it. Trying to find work closer to.home. Flares are so unpredictable and then the anxiety of it makes it worse. Vicious cycle..

FPO brandydelight
Joined Jun 13, 2015

Sun, June 21, 2015 10:56 AM

 Reply posted for apend1.

So sorry to hear this. I have been there. I had a flare that lasted 6 mos and it took a huge toll on me, too. At work I would carry spare clothing for those times I would need it.Nutrition is important. I saw a nutritionist, and did SCD diet. SCD diet drained me of my energy, and I only did it 2 weeks, but it seemed to calm my colon. I feel that the emotional toll needs to be addressed too. I really tried to work hard to calm and relax myself (having this condition is so stressful!). I listened to meditation CDs, took short walks regularly, tired to go to bed early, and cut out any stressful activities that were optional while i focused on healing.I found that having a few close friends to talk to was a comfort as well. It gradually got better for me, and I had remission for many years. I don't have any magic answers, only what worked for me. I just started another flare after 7 years remission, so we'll see how it goes. Sending healing wishes to you. Hang in there! I hope you feel better soon.

FPO momof2girls
Joined Jun 21, 2015

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