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Crohns in my stomach


Fri, June 27, 2008 12:36 AM

 In 95 I was with Crohns.  A complicated disease to start with, but the doc said it was in my stomach. In the beginning I vomited a lot. As the years have pasted the disease spread. I now have disease in all three segments of my small bowel.  Because of the location, finding a med that would work consistently has been near impossible.  The first dose, and even the second dose of remicade was great.  it was the third, forth, and fifth doses that stopped my breathing.  I currently take prednisone, pentasa, and prilosec.  Also I have developed thyroiditis, and osteopinina.  Both of which the docs said are related to the crohns.  Does anyone else have Crohns in their stomach, What other immune diseases have showed up with your IBD?

FPO tlamon
Joined Jun 26, 2008

Tue, July 01, 2008 12:07 PM

 Reply posted for tlamon.

Hello,

Yes I have Crohns in my stomach, I have had it there now for 21 years and Crohns for 33 years.  My doctor monitors it regularly and I am taking 6mp, Pentasa, Previsad, and Lorazapam, plus a b12 injection monthly, and Calcium and Potasiaum daily.  Make sure your doctor keeps a close eye on you, and tries as many options as possible.

 

Littlestar

FPO littlestar
Joined Jul 26, 2008

Mon, June 30, 2008 10:11 PM

 Reply posted for tlamon.

I'm finding that the omeprazole is helping my stomach.  I get occasional cramps & nausea, but it's nothing I can't handle.  My eating habits are terrible & that doesn't help.

FPO pembroke
Joined Jun 1, 2008

Sun, June 29, 2008 11:16 PM

 Reply posted for blondecarebear.

Thank you for the reply.  I hope things are going good for you.

FPO tlamon
Joined Jun 26, 2008

Sun, June 29, 2008 11:15 PM

 Reply posted for pembroke.

I'm truly sorry to hear that your disease is in these areas.  as with me i'm sure finding drugs to work has been very difficult.  What are you taking, and how is it working for you?

FPO tlamon
Joined Jun 26, 2008

Fri, June 27, 2008 12:00 AM

 Reply posted for blondecarebear.

I was just DX with Crohn's in April of this year - the disease is effecting my esophagus, stomach, entire colon & rectum.  Once I got over the first flare of the disease, the stomach pain lingered.  I now take omeprazole to relieve the stomach symptoms.  I also take Imuran & sulfasalazine.

FPO pembroke
Joined Jun 1, 2008

Fri, June 27, 2008 12:00 AM

 Reply posted for tlamon.

I haven't had crohns in my stomach i don't think but I had gastritis in my stomach which felt like crohns.  It was like a lining of my stomach being eaten away and man was I one sick puppy.  Maybe that is what the dr. meant?

FPO blondecarebear
Joined Jun 27, 2008

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